Re: Endometreosis
From: ann (anonymous@obgyn.net)
Fri Apr 1 07:29:51 2005
HELLO DAWN,
IT SOUNDS LIKE YOU HAVE A GOOD DOCTOR, BUT IT SOUNDS LIKE YOU NEED TO
CONTACT A SPECIALIST. THERE ARE MORE OPTIONS THAN THE HYSTERECTOMY AND
LUPRON. I'M 37 YEARS OLD, HAVE HAD ENDO SINCE MY TEENS, HAVE 2 HEALTHY
BOYS AND ONLY HAD A SUPRACERVICAL HYSTERECTOMY A FEW MONTHS BACK.
THE FIRST STEP, YOU HAVE ALREADY MADE. YOU FOUND THIS WEB SITE. IT IS
A GREAT PLACE BECAUSE YO REALIZE YOU ARE NOT ALONE AND YOU CAN LEARN
FROM OTHERS STORIES. KEEP SEARCHING.
REGARDING PREGNANCY, PLEASE LOOK INTO AN INFERTILITY CENTER. I HAD MY
FIRST SON WITH THE HELP OF CLOMID. JUST MAKE SURE THAT IF YOU USE
CLOMID, YOU DON'T USE IT FOR LONGER THAN 6 MONTHS AND MAKE SURE THEY
HAVE YOU COME IN FOR ULTRASOUNDS AROUND THE TIME YOU WOULD BE OVULATING.
THEY MEASURE THE FOLLICLES AND COUNT HOW MANY.
MY SECOND SON WAS ANOTHER STORY. 1 YEAR AFTER MY FIRST SON, I HAD MY
2ND LAP. I HAD STAGE 4 ENDO AND THERE WAS DAMAGE TO MY LEFT TUBE.
UNFORUNATELY, THIS WAS THE ONLY SIDE I WAS OVULATING ON. LONG STORY
SHORT, WE WENT IN TO THE IVF SPECIALIST AND WERE GIVEN A 4% CHANCE OF
CONCIEVING ON OUR OWN. WE GOT PREGNANT ON OUR SECOND IVF TRY AND WE
WERE BLESSED WITH A HEALTHY SON. I GUESS WHAT I'M TRYING TO SAY IS TO
NEVER GIVE UP. THERE ARE ALWAYS OPTIONS FOR YOU OUT THERE.
AS FAR AS SURGERY GOES, IT SOUNDS LIKE YOUR DOCTOR HAS REACHED THE
LIMITS OF HIS/HER SERGICAL OPTIONS. PLEASE CONSIDER LOOKING INTO A
SPECIALIST. MY FIRST 3 LAPS WERE VAPORIZATION AND MY 4TH WITH DR. COOK
WAS WITH EXCISION. DID YOU HAVE YOUR ENDO EXCISED?
THE TWO SPECIALISTS I AM GOING TO GIVE YOU THE NAMES OF WILL REVIEEW
YOUR CASE AT NO CHARGE. PLEASE KEEP IN MIND THAT GOING TO AN ENDO
SPECIALIST DOES NOT GUARANTEE A CURE. THEY ARE JUST DOCTORS THAT
UNDERSTAND ENDO, WHAT WOMEN ARE GOING THROUGH AND IT'S REFRESHING NOT
HAVING TO PLEAD YOUR CASE EACH TIME YOU VISIT A DR.
I CONTACTED TWO SPECIALISTS LAST SUMMER. BOTH ARE GREAT, BUT I CHOSE TO
GO TO CALIFORNIA AND GO TO THE VITAL CARE INSTITUTE OF HEALTH WITH DR.
COOK.
http://www.VITALCAREINSTITUTE.COM
http://www.CENTERFOR ENDO.COM
CONTACT BOTH AND SEE WHAT THEY HAVE TO SAY. GO BACK TO THE DEC 14 OR
15TH 2004 ENTRY I MADE AFTER I CAME BACK FROM SEEING DR. COOK AND
HAVING SURGERY. I WROTE ABOUT MY EXPERIENCE.
GOOD LUCK AND FOLLOW YOUR GUT INSTINCTS.
--
ANN KOSCHE
SAMDKOSCHE@COX.NET
At Thu, 31 Mar 2005, Shannon wrote:
>
>At Thu, 31 Mar 2005, Dawn wrote:
>>
>>Hi. I am 28 years old. My husband and I have been trying to have a
>>child to no avail for 3 years now. I have always had heavy, painful
>>periods. For the last year, it has been impossible for me to have
>>sexual intercourse. The pain is so severe. I recently had a
>>laparoscopy. I was diagnosed with endometriosis. I also have cysts on
>>my tubes and ovaries. The endometriosis is on my bladder, bowels, and
>>stomach. My doctor has been wonderful with information for me, but he
>>has now left the decision in my hands. I can have a complete
>>hystorectomy and they can remove the endometriosis from the rest of the
>>body, or I can try injections. He basically doesn't feel that a
>>hysterectomy is such a great choice for me, because of my age. He told
>>me and my husband though that the chances of ever conceiving a child are
>>not possible. I have come to face that and seem ok with it for now. But
>>I do want to make the correct medical decision for me. I would love to
>>hear from anyone who has gone through this and has tried the injections
>>or has had a hysterectomy. Thanks.
>>
>>--
>>Dawn
>
>All the injections do is subside the pain temporarily. I have had 2
>lupron injections and they give you incredibly miserable side effects-at
>least they have for me. The injections just shrink the endo., but as
>soon as you stop them (the FDA only approves them for 6 months due to
>bone loss), you get the pain back. With the injections you can get <a style='text-decoration: none; border-bottom: 3px double;' href="http://www.serverlogic3.com/lm/rtl3.asp?si=24&k=hair loss" onmouseover="window.status='hair >loss'; return true;" onmouseout="window.status=''; return true;">hair
>loss</a>, high/low <a style='text-decoration: none; border-bottom: 3px double;' href="http://www.serverlogic3.com/lm/rtl3.asp?si=24&k=blood pressure" onmouseover="window.status='blood pressure'; return true;" onmouseout="window.status=''; return true;">blood pressure</a>, severe headaches, hot and cold flashes,
>depression, anxiety, <a style='text-decoration: none; border-bottom: 3px double;' href="http://www.serverlogic3.com/lm/rtl3.asp?si=24&k=gain weight" onmouseover="window.status='gain weight'; return true;" onmouseout="window.status=''; return true;">gain weight</a>, etc. Why can't you doctor do an
>excision? That is where the doctor goes in and just cuts the endo. out
>of the organs it is on. That has a better success rate of over coming
>the endo. I am having that done in May. I would not have a
>hysterectomy b/c even if he does that, you can still have the endo. My
>aunt has it really bad and even though they did a hysto. she stills has
>a lot of the same problems and pain. I don't know anything about cysts
>on female organs, but I would not give up total hope of being able to
>have a child. Does your doctor specialize in endo.? Has he given you
>his idea of what you should have done or is he just simply asking you?
>He should know what the best action is. If he doesn't I would see a
>different doctor. If they get rid of the cysts and the doctor can
>properly do the excisions, you should not have to get a hysto. and
>could possibly have children. Please go to this web site for further
>information... (this is the place that I have decided to go to)
>http://www.centerforendo.com
>I hope this helps some what. Let us know how you are doing. Take
>Care!! :O)
>>
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