ENDO Messages for April, 2005: Re: Can it come back?

Re: Can it come back?

From: Amy (anonymous@obgyn.net)
Fri Apr 1 07:26:01 2005

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Endo can definitely come back at any time, pills or no pills so your doctor is misinformed if he thinks otherwise. I am a prime example. I have been on birth control for years and still have many issues with endo. Even taking them continuously over the last three years hasn't done much. Since I have severe periods, it is nice to not have them every month, but taking the pills has not made the endo go away. It may help it some but it is not a cure. There is no cure for endo. I think the pills control it somewhat because they are a steady stream of hormones, and low in estrogen.

I have had three laps, so I know it is not fun to have them and miss work. A lap gives me some relief for awhile but not long. Right now I am averaging a lap every three years, but could probably have them sooner. Just had the third last summer and followed it with Lupron. Only been off the Lupron for two months and back on my pills and I am already feeling and seeing subtle signs of the endo returning. Also a little endo doesn't mean no pain or other issues. Depending on where the adhesions and scarring is located can affect how much pain you have. I have a low Stage 3 but have severe pain. My doc says that some women have little endo and lots of problems, and some women have lots of endo and relatively no problems. Just one more thing that makes it a hard disease to understand.

Hope this helps a little. If your doctor is not listening to you or wants to insist it could not come back due to birth control, find another doctor. After going through several myself, I finally found a great one who always listens and understands. It is amazing how much better I feel knowing my doctor is informed and concerned.

Hang in there! Amy Meyer

At Thu, 31 Mar 2005, anonymous@obgyn.net wrote: >
>I was diagnosed with endo 3 years ago and was put on birth control it
>helped for a while and then I started to get pains again and thought it
>could be an uti but test came back negative for it so i went to my gyno
>and he said it couldn't be the endo back b/c he didn't find a lot and
>being on the birth control it shouldn't come back. but he said that we
>could do another lap or change my bc to continuous bc. so i decided to
>do the continuous and it help a lot and i had no more pain. Well I had
>my period a week ago and now im starting to hurt a lot and i have sharp
>pains in my lower back and sides and it hurts to sit. I'm afraid that
>it could be back but i don't want to have to miss more work to have
>another lap done. What are the chances of it coming back while being on
>the pill?

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