ENDO Messages for April, 2005: Re: Endometreosis

Re: Endometreosis

From: Amy (anonymous@obgyn.net)
Fri Apr 1 07:15:10 2005

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Dawn,

I have done the Lupron injections and for me, it helps a lot but the endo always comes back. I am lucky that I do well on Lupron and it usually provides me about a year of no pain and other endo symptoms. I can definitely relate to the painful intercourse. Has always been a problem for me but I am lucky that my husband understands and supports me. But that sure can play a lot of mental games with your head! It isn't that I don't want to have sex, but that my body doesn't cooperate. Sometimes depresses me and makes me feel like I am not a good wife.

I have had three laps, two courses of Lupron, and I don't know how many different kinds of bc I have tried. Now take them continually which helps some, but doesn't keep the endo at bay. I almost had a hysto last summer and then decided to go for another lap and Lupron to buy time. I am 33 but have never wanted children (I have fur babies!) so fertility wasn't the issue. Just wasn't sure if I was ready for complete menopause. I have talked it over with my Doc, even went to a counselor for several sessions, and have decided I will have everything removed when the endo returns and gets really bad again. Two women I work with just had hysterectomies because of endo. So far, both of them say the endo pain, etc. is gone but they are having hormone issues. My Doc told me I can keep "band-aiding" things or remove my organs and hope it helps. I am at peace with the fact that I will one day have a hysto.

If you ever want to talk more, feel free to email me privately. I can definitely relate and understand. Hope it helps to know you are not alone.

Hang in there! Hugs to you! Amy Meyer

At Thu, 31 Mar 2005, Dawn wrote: >
>Hi. I am 28 years old. My husband and I have been trying to have a
>child to no avail for 3 years now. I have always had heavy, painful
>periods. For the last year, it has been impossible for me to have
>sexual intercourse. The pain is so severe. I recently had a
>laparoscopy. I was diagnosed with endometriosis. I also have cysts on
>my tubes and ovaries. The endometriosis is on my bladder, bowels, and
>stomach. My doctor has been wonderful with information for me, but he
>has now left the decision in my hands. I can have a complete
>hystorectomy and they can remove the endometriosis from the rest of the
>body, or I can try injections. He basically doesn't feel that a
>hysterectomy is such a great choice for me, because of my age. He told
>me and my husband though that the chances of ever conceiving a child are
>not possible. I have come to face that and seem ok with it for now. But
>I do want to make the correct medical decision for me. I would love to
>hear from anyone who has gone through this and has tried the injections
>or has had a hysterectomy. Thanks.
>
>--
>Dawn
>

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