Re: I am in need of advice! Please Help!
From: Amy (anonymous@obgyn.net)
Fri Apr 1 06:59:42 2005
Glad you found the forum and posted. It is a wonderful place to get
advice and chat with other women who can relate. Endo is such an awful
disease and provides so many physical and mental challenges.
What does your Doctor say about the fluid, etc? I have never had
anything like that but have had problems with them seeing my left ovary
during ultrasounds because it is often covered in scar tissue and can't
be seen. Have they ever said anything about your tubes during your
laps? Endo does highly increase the chances of infertility, but if the
tubes are affected by it, the chances are much higher. I can't tell you
what to do about having children. I think you need to discuss it with
your Doctor and fiance. There are lots of infertility options out there
now too and this technology improves each year.
Lupron is a scary decision and is only a temporary form of treatment.
Endo has no cure so nothing will make it go away completely, sometimes
not even a total hysterectomy. I have done Lupron twice and did well on
it. My endo pain and other symptoms go away while on it, but do come
back. Everyone reacts differently so hard to know how you would do on
it. Just listen to your body and instincts and make a decision that is
best for you.
Don't have any great answers, but I hope it helps to know you aren't
alone. Everyone on the forum can relate and understand, so maybe you
can at least find some peace of mind.
Hugs!
Amy Meyer
At Thu, 31 Mar 2005, Alexis wrote:
>
>Iam 19 and have had severe pelvic pain since I was 13, I just thought
>that I had painful periods and that I would have to learn to deal with
>it. I began birth control pills for cysts on my ovaries when I was 15
>and have been on some type of contraceptive since. The doctor thought
>that the cysts would go away and that I would not have anymore problems.
>>From there I changed docs because the one I was seeing just wanted to
>keep me on highly sedadtive pain pills. When I changed OB/GYNs he first
>changed my dosage then placed me on a constant cycle of pills to stop my
>cycle. When that didn't work he placed me on Depo-Provera. I have had
>2 laps, and my new OB/GYN found Endo after the second surgury it was
>under my uterus, I also had a pelvic full of fluid that he though would
>be from cysts that had ruptured causing all my pain. My pain diminished
>for about four months, but now it is back in full force and getting
>worse every day. My doctors says my next step is Lupron. I have read
>awful things about Lupron and that you can only use it for 6 months then
>it all comes back. I don't think it is worth the damage and suffering.
>I have also read about the infertility rates and how they increase with
>the disease. I have been told not to wait too long to try having a
>child.Should I be concerned about the large amout of fluid that they
>always find? I have had 15 or so ultrasounds in which the tech alwys has
>trouble finding my left ovary because of the of fluid and cysts like
>masses. Every time I ask the doc about it he says that I must have had
>a cysts burst. Why am I forming cysts if I have not had a cycle in over
>a year and a half because of the medications. Should I worry that I was
>told by the tech that my right ovary looked ok, but my left she just
>couldn't find well enough to show me? I am at a loss right now, what
>should I do next? My boyfriend and I are looking to get married in the
>near future and have talked about how near it should be because of the
>chances of bearing children! I am just worried that things are not all
>ok with me right now, what types of things should I do next? Is Lupron
>the way to go, and should I worry about my ovary that is all but totally
>visable? I have thought about going back on the pill because the Depo is
>kicking my butt. I am so emotional and tired all the time. I want to
>feel normal again. If I go back on the pill will it help my chances of
>having a child easier when I am ready? I am still new to all this and I
>need advice. HELP!!
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)