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Re: THE TRUTH BEHIND PAIN: A WOMAN WITH ENDO.From: Yvonne (anonymous@obgyn.net)Thu Mar 31 19:21:34 2005
Jenni, Im right there with you hun... Im 26yrs now, Ever since my first period at the age of 11 all I have come to know pain better then I would Like.. And being told that its a part of being a women!!!!! WHAT 11 yrs old and being in so much pain that I couldnt move thinking IM GOING TO DIE I KNOW IT! It wasn't until I was 23 when I was finally given a name for it. AND a couple year previous in a Lap surgery THEY MISSED IT.... a total of 3 surgeries and continuous BC LUPRON twice ( 6 months each session ) and still not much relief... Its a shame that people are so blind and so ill educated and ignorant about what we go through. I seriously think if it was a man going through this it would have world wide attention!!!!!!!!!!!!!!!!!!
-- Yvonne Mon, 21 Mar 2005, anonymous wrote: > >everything you said is everything i have felt about my endo. thank you >for summing it up for me. i thought you might be intrested in reading >something i found on th einternet. it is somet hing inspirational here >is the site >http://www.geocities.com/endovictims/inspirational.html >it is a beautiful letter. > >At Sat, 19 Mar 2005, Jenni wrote: >> >>Many people will brag "You don't know the meaning of pain." Well, at >>eighteen years of age I can safely say I do. I have never been in a bad >>car accident, I have never broken a bone, I’ve never had cancer, I’ve >>never been shot, or addicted to drugs. In fact I’ve never been through >>most things people call traumatic. I have, on the other hand, had two >>X-rays, an ultra sound, an iodin enema, a CAT scan, anti-biotics shot >>into my ass, anti-biotics that I ended up being allergic two, a surgery, >>countless hours in the doctor’s office and hospital bills, doctor’s >>bills through the roof, and three mis-diagnoses all for the wonderful >>doctors to tell my I have a disease that I never even heard of. But >>wait it gets better. This disease causes extreme pain, it is the >>leading cause of infertility in women, no one knows what causes it, >>there is no cure, and some doctors think it’s all in your head. “Oh you >>have Endometriosis. Here have some Prozax. The pain will go away like >>that.” Okay that didn’t happen to me, but it happens to a lot of women. >>Before magical Prozax came about it was “Have a hysterectomy that’ll >>cure it.” What you know wrong there too. Endo can come back even after >>a hysto. So the question is: what do they do if you have Endo? Well, >>there’s birth control, a hysto, having a baby, Lupron (this wonderful >>drug is designed so that you go through menopause for six to three >>months, depending on what dose you get), progesterone cream, and a >>various amount of other things. Sounds kind of simple except you’re >>forgetting that none of these cure Endo, they just treat it, subdue it >>for awhile. So where are our bleeding hearts, where are the hundreds, >>and thousands of people willing to help our cause? Where are the people >>who’ll go door to door to get money to find a cure, Hell will settle for >>a cause? Where are all those people who take time out of their lives to >>go on Endo walks, or Marches, or any kind of fund-raise? “Well, you’re >>not dying, no one famous has it, I don’t know anyone who has it, and all >>women have pain before and during their period. So just quit >>complaining, grin and bare it.” Those are wonderful answers, aren’t >>they? I’m being sarcastic incase you couldn’t tell. For all those who >>say I should just grin and bare it let me say something. You’ve never >>been seventeen years old and in pain that not even the doctors can >>explain. You’ve never been in so much pain that all you can do is lie >>in bed and cry. You’ve never been told that there’s a slim-to-nil >>chance that you’ll have the one thing you’ve been looking forward to >>since you can remember. You’ve never woken up screaming because a shot >>of white hot pain just went straight through your abdomen. You don’t >>have to worry that if you ever actually have a kid that you could pass >>this onto your daughter, or your grand-daughter. If you have >>experienced these things then you should know not to tell me to grin and >>bare it. For all those of you who have never experienced these things >>then keep your mouth shut until either you or a close friend or family >>member does then we can talk. Until then leave me to my pain.
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