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Re: Endo Research Would like everyones inputFrom: anonymous (anonymous@obgyn.net)Wed Mar 30 21:28:41 2005
Stephanie, I had severe pain for a couple of years and problems with periods for the past 7 years. I tried nearly every kind of birth control on the market to no avail. I had migraines, heavy bleeding, and severe pain all mixed together for about the last year and a half.I also developed severe acne (which i have never had in my life) About three months ago i had a pap come back bad and after biopsy it was determined that i had severe dysplasia/ carcinoma in situ of the cervix. I also had a mass behind one of my ovaries. I had a hyster and laproscopy about 3 weeks ago. I had extensive endometriosis which caused a large mass of scar tissue behind my ovary. Since surgery the healing process has went fairly well. I feel much better than i have in a long time. I know surgery is not for everyone, but i feel it was right for me. My acne has already cleared, i haven't had any migraines and the only pain i have had is from my incisions. The doctors say even though they have removed my uterus,if they missed any of the endometriosis (they are confident that they got it all)it could come back and require surgery again 3 or 5 years from now. They feel this is highly unlikely, but want me to be aware just in case. I hope this helps with your report! At Tue, 29 Mar 2005, Pam wrote: > >At Tue, 29 Mar 2005, Stephanie wrote: >> >>Endo Research Would like everyones input >> >>Hello, I have to do a paper on Endometriosis. What women with endo >>would like to know, what we already know, what are the symptoms, what >>doctors can do to help, medication we can take to help , and what us as >>a group of ladies with endo want others to know about this disorder. >>This paper is the last paper I have to do for high school. I have 1 >>month and 2 weeks to do it. It would really be nice if I could have >>everybody’s input since all of us have endo and know what it is like. We >>all have different symptoms and the endo affects some more then others. >>Some of us have had relief and some haven’t. Please help me get info >>for this paper so others know what we are all going through. Thank you, >>every much for all the help. >>~Stephanie Rae~ > >-- >Hi Stephanie, > I'll try and give you some info on this, I have had it for 7years mine >mine started with pain on the right side and over time it kept getting worse >till I had enough my Dr. did lapsurgery to check it out and it was endo, I had >it pretty much everywhere including on my bowels. I took lupron for over a year >with no releif what so ever, I know it made me feel worse, so I had a hyster >last year but they left the ovaries still was put back on lupron for another >year and I finally said no more it made me feel horrible and I still had pain >but it felt worse then before. I was put on depo provera for 1 treatment and >that was 3 months, still have pain, I now have cyst on my left ovary so now >it's a wait and see I guess I have to go back in 6 weeks for another ultra sound. >My only wish with this disease is someone says enough and truly want to help woman >that are suffering like myself. I feel we are ginuene pigs for medications like >lupron. Well good luck on your report and let us know what grade you got good luck. > Pam >
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