ENDO Messages for March, 2005: Re: Endo Research Would like everyones input

Re: Endo Research Would like everyones input

From: Pam (anonymous@obgyn.net)
Tue Mar 29 17:49:36 2005

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At Tue, 29 Mar 2005, Stephanie wrote: >
>Endo Research Would like everyones input
>
>Hello, I have to do a paper on Endometriosis. What women with endo
>would like to know, what we already know, what are the symptoms, what
>doctors can do to help, medication we can take to help , and what us as
>a group of ladies with endo want others to know about this disorder.
>This paper is the last paper I have to do for high school. I have 1
>month and 2 weeks to do it. It would really be nice if I could have
>everybody’s input since all of us have endo and know what it is like. We
>all have different symptoms and the endo affects some more then others.
>Some of us have had relief and some haven’t. Please help me get info
>for this paper so others know what we are all going through. Thank you,
>every much for all the help.
>~Stephanie Rae~

--
Hi Stephanie,
   I'll try and give you some info on this, I have had it for 7years mine
mine started with pain on the right side and over time it kept getting worse
till I had enough my Dr. did lapsurgery to check it out and it was endo, I had
it pretty much everywhere including on my bowels. I took lupron for over a year
with no releif what so ever, I know it made me feel worse, so I had a hyster
last year but they left the ovaries still was put back on lupron for another
year and I finally said no more it made me feel horrible and I still had pain
but it felt worse then before. I was put on depo provera for 1 treatment and
that was 3 months, still have pain, I now have cyst on my left ovary so now
it's a wait and see I guess I have to go back in 6 weeks for another ultra sound.
My only wish with this disease is someone says enough and truly want to help woman
that are suffering like myself. I feel we are ginuene pigs for medications like
lupron. Well good luck on your report and let us know what grade you got good luck.
                                                                       Pam

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