ENDO Messages for March, 2005: Re: I need some info

Re: I need some info

From: Laura (anonymous@obgyn.net)
Tue Mar 29 14:17:13 2005

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At Mon, 28 Mar 2005, Laura wrote: >
>I am very new to this site but I am grateful that I found it. I felt
>very alone until I came here. Up until now, I had been just going by
>what minimal information that my doctor gave me. I have an appointment
>on Thursday as a follow up to my third lap and before I started
>searching through the archives, I wanted to see what questions I should
>be asking the doctor. Here is what I know so far...I have been
>suffering since I was 13 years old with extreme pelvic pain. I was not
>diagnosed with endo until 9/01 when I had a lap to remove my appendix
>and several large ovarian cysts. At that time I was also diagnosed with
>Crohns disease. In 2/03, I had my second lap. They removed the endo, 4
>more cysts, scar tissue and adhesions. My doctor said that the
>adhesions were so bad that it looked like spider webs inside. In 11/03,
>I started lupron. It made me sick as a dog but it did alleviate some of
>the pain. I had my third lap and d&c last week and I haven't spoken to
>the doctor yet. I have had cervical stenosis for at least the past 6
>months. Extreme lower back pain which is constant and pain during
>intercourse since I lost my virginity. Also, I have had persistent
>sinus problems with nose bleeds that seem to flare up that time of the
>month. My doctor never told me that there are stages of endo and has
>not really explained the disease much to me. All he keeps saying is to
>get pregnant which to me is very frustrating. That is if I can get
>pregnant because he did mention that I may not be able to. I am trying
>so hard to learn about this disease. Can anyone please give me some
>quick tips on what questions I should ask so I can be prepared for
>Thursday? I know I won't know everything there is to know in three days
>but any help that anyone could give me would be greatly appreciated. In
>the meantime, I will search the archives. Sorry for the long message, I
>am just desperate for some help and guidance. Thank you!

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