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Re: email to oprah
From: heather (anonymous@obgyn.net)
Tue Mar 29 10:53:32 2005
Hello, I was just reading the forums and found this thread. I, too,
have sent an email to Oprah! Before even reading this message, let's
hope her producers take the fact they are receiving multiple emails
concerning endo that this is serious! Oh, and don't worry - I used
spellcheck :)
-Heather
At Sun, 27 Mar 2005, penny wrote:
>
>At Mon, 21 Mar 2005, Susie wrote:
>>
>>Lori,
>>
>>Your message is very insightful and compassionate. I am wondering...
>>though.. who is this anonymous poster who seems to be destroying the
>>message board? I am wondering if perhaps by being allowed to remain
>>"anonymous" there is given the incentive or courage to insult. It seems
>>a terrible shame for the board to fall apart due to a poster who is not
>>afraid to share their thoughts, but is afraid to share their name...
>>
>>- Susie
>>I think that writing to Oprah was a great idea! Please keep us informed if u should receive a response. I was looking for a support line and was hopeful that these sites were just that, - people struggling with a disease helping each other, - not repremanding. since u didnt post ur actual letter one would not know what u wrote, - the pointers could be useful for future writing. - again, u did great :)
>>At Thu, 17 Mar 2005, Lori wrote:
>>>
>>>To Anonymous:
>>>I read these posts quite often and I wonder about how that just made
>>>Nikkie feel or how it would make me feel if someone wrote to me(a
>>>professional business women)who struggles with spelling also-used to be
>>>the spelling "B" Queen in school!! but now-no way. Anyways now being in
>>>many situations which require compassion to help others(which by the way
>>>I am not perfect at) I think of how I would feel receiving a mispelled
>>>letter from anyone. I think it would show that spelling is not what is
>>>on their mind and the least worry of their entire life!!! Yes we could
>>>use spell check and so good for you to point that out for others to show
>>>proffesionalism(spelling)when sending letters but the main point here
>>>for me is this:
>>>
>>>What is going on in your life? How are you feeling about this disease
>>>and how has it affected you? I am assuming it is really bad for you! and
>>>I am sorry. I was just wondering because you seem to really want to
>>>help others here and write quite often. That shows a passion for
>>>wanting to help, perhaps that can be turned around somehow in a postive
>>>lignt? There are so many young girls here who need someone to talk to,
>>>just someone to listen. Sure it seems to me that many are needing the
>>>medical advice, but truly my heart tells me that it is a connection with
>>>others who understand. That is what we all really crave here is someone
>>>to talk to who believes us when we say we are hurting emotionally and
>>>physically.
>>>
>>>anyways prayers are with you,
>>>Lori
>>>
>>>At Thu, 17 Mar 2005, NIKKIE wrote:
>>>>
>>>>FIRST OF ALL THAT WAS NOT WHAT I SENT TO OPRAH. I WAS JUST POINTING OUT
>>>>WHAT I TYPED IN MY EMAIL TO HER. SO DON'T WORRY MY GRAMMER AND SPELLING
>>>>WAS CORRECT.THIS FORUM IS FOR SUPPORT NOT ABOUT SOMEONES GRAMMER BUT
>>>>THANKS FOR POINTING THAT OUT. WHEN I TYPE ON THE FORUM I AM USUALLY
>>>>VERY BUSY AND DON'T PAY ATTENTION TO MY SPELLING.
>>>>At Thu, 17 Mar 2005, anonymous wrote:
>>>>>
>>>>>First, to anyone who is going to get their panties in a twist over what
>>>>>I'm about to say - don't. Stop and think before you jump all over me
>>>>>for pointing out the obvious and you will see that I'm right.
>>>>>
>>>>>Please, do yourselves and everyone else here a favor, a big, huge, giant
>>>>>favor. If you are going to send emails or letters to Oprah or anyone
>>>>>else to try to get attention and help then please, please, please, type
>>>>>it in Word or something first, do a thorough spellcheck, make
>>>>>corrections and then and only then send it.
>>>>>
>>>>>If I was Oprah and I received the email below I would DELETE it faster
>>>>>than you can say D-Leet! Casual writing is fine enough here and in
>>>>>emails with your friends and family but the more organized your thoughts
>>>>>and accurate your spelling and grammar the more seriously you will be
>>>>>taken. Stick to the facts of the disease, include factual information
>>>>>about how it has affected your quality of life. Don't include, "a
>>>>>friend of mine this or I heard that" statements because it invalidates
>>>>>everything else you have said or will say.
>>>>>
>>>>>Whenever possible include sources of information regarding the disease,
>>>>>drugs used, etc. I'm pretty sure that before Oprah does a show she has
>>>>>her staff thoroughly research the subject matter and the more you can
>>>>>give them to work with the better.
>>>>>
>>>>>At Thu, 17 Mar 2005, anonymous wrote:
>>>>>>
>>>>>>i sent an email to oprah saying i was 32 years old. i have a disease
>>>>>>called endometriosis. i aslo said how i have had 5 surgeries in two
>>>>>>years. i have been put in menapause at a very early age.i told her that
>>>>>>the public is not aware of this disease. nobody even knows it exists. i
>>>>>>also siad it hard to get thr prper treatment for cause some don't even
>>>>>>understand. to see a specialist you have to travle to another sate.
>>>>>>there are not that many endo specialistthe public is unaware of what
>>>>>>this disease can do to you . it can cripple your life in every way it
>>>>>>has mine. i also said that it changes your quailty of life.i also told
>>>>>>her that doctors sometimes don't even know what to do with us.some
>>>>>>doctors don't know how to treat us and some just want give us a hysto. i
>>>>>>also said there was no cure.i said some women like me will travel 3000
>>>>>>miles to see a specialist. i told her my goal was to be pain free and
>>>>>>for people to know and undestand the physical and emotion pain we go
>>>>>>through. taking all kinds of hormnes. induced menapause. all the bad
>>>>>>side effects.it is a rough journey to go through. i am sure my eamil
>>>>>>won't due anything but at least i tried
>>>>>>nikkie
>>>>
>>>>--
>>>>NIKKIE
>>>>
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