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Re: Anyone Used Lupron & Had Hysto.?
From: Laura (anonymous@obgyn.net)
Fri Mar 25 17:10:08 2005
I have not had a hysto either but I did go on the lupron. At first, I
did not think I was getting any relief. However, once I went off of it,
I realized how much it actally helped me. It is a very scary drug and
it took me awhile before I made the decision but I have to say it did
give me significant relief. On 3/23, I had my third lap in 3 1/2 years.
I contribute it partly to me waiting so long to start the lupron and not
continuing with the therapy once I started it. I pray that this surgery
gives me some relief because the chronic pain is unbearable. Everyone
that I know of who has been on lupron or any professional that I have
spoken to has not indicated that the lupron will make it worse. I hope
this helps you. Does anyone know of any other treatments that my be
effective?
At Fri, 25 Mar 2005, Weebs wrote:
>
>I have not had a hysto, but I have been diagnosed with Stage IV endo. I
>am 2 weeks into my first shot of Lupron. It has made me feel worse so
>far, but that is due to the surge in Estrogin my body produces when the
>Lupron cuts the signal to the ovaries. Once my body levels out from the
>shot, I will be fine. After 3 months of Lupron injections, I will go
>into major surgery to scrape all the endo from my bowels, ovaries,
>tubes, etc. Basically my uterous is cemented to my bowels in the back
>area and the space between the back of uterous and bowles is filled with
>endo.
>
>I say "Don't be afraid" but do all the research you can and decide for
>yourself whether or not the risks are worth it. For me, they are. I
>hurt WAY too much to let this go on and on. And thankfully, I have a
>GREAT doctor.
>
>At Thu, 24 Mar 2005, Amy wrote:
>>
>>Julie,
>>
>>I haven't experienced any worsening of my condition due to Lupron. I
>>just finished a second round of it (first one was in 2001) and for me,
>>it is truly a miracle drug. I have no pain or other symptoms at all
>>while on the Lupron. My pain, etc. has not seemed to have gotten any
>>worse, etc. from the shots. For me, I tend to stay pretty pain and
>>symptom free for a year or more after the shots are done.
>>
>>Lupron is a very scary decision. I debated for several years before I
>>finally tried it due to no other real options. I am glad I did do it
>>since it helps me so much, but everyone reacts very different to it. You
>>could search the archives on the forum for posts on Lupron and find good
>>and bad stories. Just listen to your instinct, do the research and make
>>a decision for yourself. I am 33 now but pretty much know I will have a
>>hysto in the next couple years. This last round of Lupron was just to
>>buy some time as I wasn't ready for menopause yet, but I have made the
>>very personal and difficult decision to have a hysto when the endo
>>returns. I do not feel that Lupron will cause me to have a hysto any
>>sooner than I would have had I not taken it.
>>
>>Hang in there! If you ever want to talk privately, feel free to email
>>me.
>>
>>Hugs!
>>Amy Meyer
>>
>>At Wed, 23 Mar 2005, Julie wrote:
>>>
>>>I went to my doctor today and she wants to start me on Lupron on Friday.
>>>I have noticed a lot of women that were diagnosed at 20 and had a
>>>hysterectomy at 26 or around there. My question is, is if you are one
>>>of those women who were on Lupron after you were diagnosed.......do you
>>>think that the Lupron could have made things worse...leading to your
>>>hysto at such a young age (young being-premenopausal or before menopause
>>>ages)? It seems to me that no matter your age from point of diagnosis to
>>>5 to 10 years later women are getting hysterectomy's or they are getting
>>>a lot of cysts and things like them. I personally am coming to a
>>>conclusion that these treatments the doctors are saying work are making
>>>women worse. This is just a thought though.......I can not be sure,
>>>thats why I need your feedback. Just one of many thoughts rattling
>>>through my head when trying to decide on my course of treatment-and I
>>>really am not liking the sounds of Lupron. My doctor seemed to be upset
>>>with me today when I told her that I didnt trust it but I would trust
>>>her judgement and go ahead and take it- she quickly replied "well I'm
>>>not forcing you to take it." Anyway I hope to hear from all of you and
>>>thanks! Have a great night.
>>>
>>>--
>>>Julie juliechristie_03@yahoo.com
>>>
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