ENDO Messages for March, 2005: Re: Anyone Used Lupron & Had Hysto.?

Re: Anyone Used Lupron & Had Hysto.?

From: Sara' (anonymous@obgyn.net)
Thu Mar 24 07:48:02 2005

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At Wed, 23 Mar 2005, Julie wrote: >
>I went to my doctor today and she wants to start me on Lupron on Friday.
>I have noticed a lot of women that were diagnosed at 20 and had a
>hysterectomy at 26 or around there. My question is, is if you are one
>of those women who were on Lupron after you were diagnosed.......do you
>think that the Lupron could have made things worse...leading to your
>hysto at such a young age (young being-premenopausal or before menopause
>ages)? It seems to me that no matter your age from point of diagnosis to
>5 to 10 years later women are getting hysterectomy's or they are getting
>a lot of cysts and things like them. I personally am coming to a
>conclusion that these treatments the doctors are saying work are making
>women worse. This is just a thought though.......I can not be sure,
>thats why I need your feedback. Just one of many thoughts rattling
>through my head when trying to decide on my course of treatment-and I
>really am not liking the sounds of Lupron. My doctor seemed to be upset
>with me today when I told her that I didnt trust it but I would trust
>her judgement and go ahead and take it- she quickly replied "well I'm
>not forcing you to take it." Anyway I hope to hear from all of you and
>thanks! Have a great night.
>
>--
>Julie juliechristie_03@yahoo.com
>Hi Julie,

I just wanted to respond to your post.I was officially diagnosed at age 24 by lap.I am now almost 36 and will be having a hyst. this summer. I think the main thing you need to remember with Lupron, Danazol, Depo Provera, BCP's, etc. is that none of these meds. cure endo.(Outside of excision surgery - neither do the laps. for that matter). It's a progressive disease, & it gets worse over time. All the drugs do is buy you some time by temporarily retarding the growth of endo, and hopefully improve your pain, bleeding & whatnot. Some ladies are fortunate to have relatively long periods of relief during & after treatment - unfortunately some are not.Some people respond well to the meds. for a short time during treatment, and then go right back to where they started.I did Lupron for a year straight about 11 years ago.The pain & problems I had before the surgery & Lupron was God awful.The Lupron helped me while I was on it and the endo. stayed pretty much at bay for about 2 years after.Other treatments have not had any real positive, or long lasting results for me.(Depo., BCP's, Progesterone, etc.)I was able to have my daughter almost 4 years ago, and things started to get really awful again soon after I had her. (So the old myth that getting pregnant cures endo. is painfully untrue). For me, I don't feel that Lupron made anything worse as far as the endo. goes. Actually, knock on wood - even on my absolute worst days I don't feel anywhere as bad as I did before I did Lupron.I have not done Lupron since then because of bone thinning (but again when I did it Lupron was a new drug & nothing was really known about it- so I didn't have add back therapy.)My reasons for having a hyst. are simple. I have gotten to the point where nothing really works for me medically,things have worsened, & I can't hang in there for 15 more years until menopause because I am sick and tired of always feeling sick and tired. Realistically, I just can't see having a band aid surgery every 2 years for the next 15 years and constantly filling new & different scripts and hoping maybe just this one time something will work.Sorry to ramble on..basically I said all this to say, I feel that my endo. has progressed to a point where conservative measures no longer work,and it would have done so regardless of whether or not I was on Lupron or anything else for that matter.I hope this helps some. Sara'

--
Sara'Fleming

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Previous message: Amy: "Re: Anyone Used Lupron & Had Hysto.?"
In reply to: Julie: "Anyone Used Lupron & Had Hysto.?"
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