ENDO Messages for March, 2005: Re: New to Endo

Re: New to Endo

From: Angela (anonymous@obgyn.net)
Tue Mar 22 16:47:19 2005

Messages sorted by: [ date ][ thread ][ subject ][ author ]
Next message: Erica: "Help... I need a decent doctor"
Previous message: Julie: "Re: Is it endo?"
In reply to: Julie: "Re: New to Endo"

At Tue, 22 Mar 2005, Julie wrote: >
>At Tue, 22 Mar 2005, Mary wrote:
>>
>>At Sat, 26 Feb 2005, Shannon wrote:
>>>
>>>At Sat, 19 Feb 2005, Weebs wrote:
>>>>
>>>>Hi everyone.
>>>>
>>>>I am going in for my first lap next Wed. I have read up on it
>>>>extensivly and both my dr. and I feel that endo is the cause of most of
>>>>my problems. I have had a history of ovarian cysts and pain during
>>>>sexual intercourse. Quite a few years ago, I suddenly had horrible pain
>>>>on the right side of my pelvic area along with uncontrolable vomitting.
>>>>I was taken to an urgent care, which in turn sent me right into the ER
>>>>because they thought my appendix burst. After being there for sometime
>>>>and being examined, I was told to see my regular obgyn because they
>>>>suspected I had pelvic inflamatory disease. After going to my obgyn, I
>>>>was told I had nothing but a minor cyst burst and was recommended to go
>>>>on birth control. I did for a few months but I couldn't handle the
>>>>birth control and stoppped taking it. After getting new health
>>>>insurance and a new obgyn, I was given an ultersound that showed I did
>>>>have a small managable cysts on both my ovaries. The obgyn decided that
>>>>the problem was probably a cyst that ruptured and I should be fine from
>>>>then on out. Which I was, until recently. Pain during sex came back up
>>>>once again and my ovaries hurt like hell (now my left one is giving me
>>>>some shooting pain at times). After a NEW obgyn and another ultersound,
>>>>it was shown I had a large mass in or near my left ovary (and a tiny
>>>>functionanl cyst on my right). They treated me with a 10 day supply of
>>>>provera and I was on my way. Until a few months ago, when the pain came
>>>>back once again! Now 2 ultersounds later, my obgyn is saying I might
>>>>have endo (I have other symptoms too...bladder infections in which the
>>>>dr. told me I didn't have one....that's has happened 3-4 times now....
>>>>pain when bladder is full, the feeling of soemthing still in there after
>>>>I poop, sharp pain on left side during sex, pain in pelvic area
>>>>during/after sex.) The obgyn also said that there is a mass in or on my
>>>>left ovary still....
>>>>
>>>>So, on to the next step. The Lap. I'm pretty anxious about it. I'm
>>>>not sure what to expect, pain wise, afterwards. I've never had stiches
>>>>or gone in for any surgery before. Any help on what to expect aferwards
>>>>would be great. Thx
>>>
>>>Hi! My name is Shannon and I am 22 years old. I have had the most
>>>horrific pelvic pain since I was 12 and I will be 23 soon. I have
>>>basically been used as a lab rat. I have had sonograms, colonoscopies,
>>>cat scans, x rays, blood tests, and a lower and upper G.I. Every time a
>>>doctor has ruled out the possibilities of something I may have, they
>>>kept telling me that I may have endometriosis. I have not had a
>>>laporoscopy yet, as the new doctor I have gone to see does not wish to
>>>pre form this medical procedure on me. Instead she has given me a
>>>Lupron injection, for those of you who don't know what they are, the
>>>injections put you in a state of menopause so that your hormones no
>>>longer act. This series can only be done for a total of 6 months and
>>>long term side effects can lead to a severe loss of bone in women. I
>>>have felt like I was going crazy for years as the doctors continously
>>>told me "the pain" was all in my head. It is so very discouraging. I
>>>am in the process of trying to get another doctor that specializes in
>>>endometriosis. Every symptom of having this life altering disease, I
>>>have and the older I get the worse the symptoms. Having this makes you,
>>>at times, think that you are totally going insane. As women, we can't
>>>take "it's all in your head", or "there is nothing wrong with you", from
>>>doctors. We must persist in getting a correct diagnoses and correct
>>>treatments for this disease. Endometriosis runs in my family. I seem
>>>to lose hope so many days. I lose hope that I will lead a normal life.
>>>I don't want children right now, nor does my husband, but I can honestly
>>>testify that I would much rather have surgery and lead a productive life
>>>than to be left in pain to have a child later. It, to me, is just not
>>>worth the outcome. If any of you out there have any thoughts, any
>>>support, please write back. My husband tries to understand what I am
>>>going through, but truly has no idea. Thank you all for reading my
>>>entry and god bless all of you in pain.
>>
>>Hello. I am 26 years old and have had two children. I have alot of the
>>same symptoms that are described here but I was wondering if you can
>>have Endometriosis and still be able to have children. I am married to
>>a nymph so this makes it very hard for me. I have had a sonogram in the
>>ER and the Dr. said that there was an unusually large looking cyst in
>>my ovary and that my uterus was sitting at an angle. That was a year
>>ago. I was supposed to schedule another one but I never did. So many
>>woman in my family have cysts, I figured that it was normal. But I am
>>sure that sex isnt supposed to hurt and I want to take care of this now.
>
>I am also new to endo. just being diagnosed a week ago through a
>laparoscopy. The reason that I even had the laparoscopy is because I
>have pain during intercourse and pain during pelvic exams. I would
>burst into tears during sex and my boyfriend wouldnt know what to do. I
>have gotten to the point that I hate to even bother having sex and my
>boyfriend considers it a treat-this is something I didnt expect to be
>happening until I was married and older-the type of thing u always see
>on T.V. My mother had a lot of cysts on her ovaries and had a
>hysterectomy because there were so many and I only had one found during
>an ultrasound but I do have endo-and she probably did too, the doctors
>just never diagnosed it. If I were you I would definitely go back to
>the doctor.
>
>--
>Julie juliechristie_03@yahoo.com
>

Hi!! I'm 32 y.o., had one child and trying to get pregnant now for 9 months. I have had worsening endo since I had my first child when I was 30. Cysts (two ruptured - would rather go through a C-section again !!), fibroids, scar tissue from two laparoscopy's, gone through Lupron treatments, then put on Danocrine to help with the pain (which is also something weightlifters use..??!!) - and of course it didn't work. Now after having an ultrasound after being on Clomid for 4 months - I was told I had both ovaries producing eggs and my fal. tubes were open. OK - then why can't I get pregnant? In the meantime I have pain 3 weeks out of each month and the worst is when I start my VERY HEAVY periods and thru ovulation - which is very depressing and severely painful. I am very distant from my friends, husband, family, coworkers (also a supervisor over 12 people) - and this has overtaken my EVERY DAY life as the people around me don't understand what is wrong... (just think I'm a depressed person....).Anyway - I am basically treating myself with Darvocet and Indocin (that does help with a great deal of my pain if I take it around the clock). Any suggestions on how to get pregnant so I can try to get back to my life? Also after reading other entries on this site - kind of scared of even having a hysterectomy (hopefully after my #2 child) as people have had endo come back with everything taken out !!!???? I feel for everyone dealing with this and would love any feedback.

--
Endo Sister

Next message: Erica: "Help... I need a decent doctor"
Previous message: Julie: "Re: Is it endo?"
In reply to: Julie: "Re: New to Endo"

Women's Insurance Checklist from Auto Insurance Quote

use when must restrict search to only the endometriosis forum...
Enter search keywords:
	Returns per screen: Require all keywords: