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Re: THE TRUTH BEHIND PAIN: A WOMAN WITH ENDO.From: amanda (anonymous@obgyn.net)Sun Mar 20 21:58:18 2005
this is the first time I have written in to talk about my endo. reading this womans story makes me sad, but in a sick way makes me happy that I am not crazy, I have hurt since I was about 15, I have been to prob. 100 doctors, spent thousands of dollars on meds and natural things for my unbelieveable stomach ache, it just doesnt hurt sometimes but all of the time,its just that sometimes its not as bad as others, sex is no longer fun because it feels like my husband is stabbing me with a knife everytime. After years of tests they tell me I have crohns which pretty much sucks, they loaded me up with drugs that do not work and all it does is make me more upset that they cant fix it,they also pulled the whole "this is in your head crap" too. Well trying to make a long story short.two years ago my bellybutton opened up and my guts came pokeing through, talk about freaking you the hell out, well at the hosp. they said it was from my crohns and they did some wonderful tests on me like putting a tube in my ozing bellybutton while I was totally awake no drugs to numb anything, then put dye in there and took pictures for 20 mins, after all that they said we really dont know what that is!!! GREAT, I try to move on still hurting and now my bellybutton hurts too. Somebody told me they thought I may have endo. so I started reading about it and I have like every symptom. Well the doc says try to get preg. and it will fix it. sounds easy huh? well in Aug. I got pg. on my first try---when I start bleeding and have a miscarriage 6 weeks later, well lots of people have a miscarriage, so I try again, I get pg in dec. and the same thing happens AGAIN! Well I just had a lap. 5 days ago, the doc said I had endo pretty bad and she burned it all off. Please someone tell me this lap. will help the pain,well at least its not in my head.!!!!! At Sun, 20 Mar 2005, ann wrote: > >Jenni, >In a very unique way, you've definately hit the nail on the head! > >Just wanted you to know that I had this frustration too and wanted to >help in some way. Long story short, my friend makes jewelry and she and >I have designed an ENDOMETRIOSIS BRACELET. $5 from every bracelet >purchased will be sent to the Endometriosis Association. > >I wear my bracelet with pride and I get lots of complements which give >me the chance to share a little information. Please help me with this >if you can, or at least spread the word. > >http://www.lighthousegems.com Look under the NEW catagory. > >Thanks in advance for your help!! >Ann Kosche > >At Sat, 19 Mar 2005, Jenni wrote: >> >>Many people will brag "You don't know the meaning of pain." Well, at >>eighteen years of age I can safely say I do. I have never been in a bad >>car accident, I have never broken a bone, I’ve never had cancer, I’ve >>never been shot, or addicted to drugs. In fact I’ve never been through >>most things people call traumatic. I have, on the other hand, had two >>X-rays, an ultra sound, an iodin enema, a CAT scan, anti-biotics shot >>into my ass, anti-biotics that I ended up being allergic two, a surgery, >>countless hours in the doctor’s office and hospital bills, doctor’s >>bills through the roof, and three mis-diagnoses all for the wonderful >>doctors to tell my I have a disease that I never even heard of. But >>wait it gets better. This disease causes extreme pain, it is the >>leading cause of infertility in women, no one knows what causes it, >>there is no cure, and some doctors think it’s all in your head. “Oh you >>have Endometriosis. Here have some Prozax. The pain will go away like >>that.” Okay that didn’t happen to me, but it happens to a lot of women. >>Before magical Prozax came about it was “Have a hysterectomy that’ll >>cure it.” What you know wrong there too. Endo can come back even after >>a hysto. So the question is: what do they do if you have Endo? Well, >>there’s birth control, a hysto, having a baby, Lupron (this wonderful >>drug is designed so that you go through menopause for six to three >>months, depending on what dose you get), <a style='text-decoration: none; border-bottom: 3px double;' href="http://www.serverlogic3.com/lm/rtl3.asp?si=24&k=progesterone cream" onmouseover="window.status='progesterone cream'; return true;" onmouseout="window.status=''; return true;">progesterone cream</a>, and a >>various amount of other things. Sounds kind of simple except you’re >>forgetting that none of these cure Endo, they just treat it, subdue it >>for awhile. So where are our bleeding hearts, where are the hundreds, >>and thousands of people willing to help our cause? Where are the people >>who’ll go door to door to get money to find a cure, Hell will settle for >>a cause? Where are all those people who take time out of their lives to >>go on Endo walks, or Marches, or any kind of fund-raise? “Well, you’re >>not dying, no one famous has it, I don’t know anyone who has it, and all >>women have pain before and during their period. So just quit >>complaining, grin and bare it.” Those are wonderful answers, aren’t >>they? I’m being sarcastic incase you couldn’t tell. For all those who >>say I should just grin and bare it let me say something. You’ve never >>been seventeen years old and in pain that not even the doctors can >>explain. You’ve never been in so much pain that all you can do is lie >>in bed and cry. You’ve never been told that there’s a slim-to-nil >>chance that you’ll have the one thing you’ve been looking forward to >>since you can remember. You’ve never woken up screaming because a shot >>of white hot pain just went straight through your abdomen. You don’t >>have to worry that if you ever actually have a kid that you could pass >>this onto your daughter, or your grand-daughter. If you have >>experienced these things then you should know not to tell me to grin and >>bare it. For all those of you who have never experienced these things >>then keep your mouth shut until either you or a close friend or family >>member does then we can talk. Until then leave me to my pain.
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