Re: THE TRUTH BEHIND PAIN: A WOMAN WITH ENDO.
From: ann (anonymous@obgyn.net)
Sun Mar 20 14:38:10 2005
Jenni,
In a very unique way, you've definately hit the nail on the head!
Just wanted you to know that I had this frustration too and wanted to
help in some way. Long story short, my friend makes jewelry and she and
I have designed an ENDOMETRIOSIS BRACELET. $5 from every bracelet
purchased will be sent to the Endometriosis Association.
I wear my bracelet with pride and I get lots of complements which give
me the chance to share a little information. Please help me with this
if you can, or at least spread the word.
http://www.lighthousegems.com Look under the NEW catagory.
Thanks in advance for your help!!
Ann Kosche
At Sat, 19 Mar 2005, Jenni wrote:
>
>Many people will brag "You don't know the meaning of pain." Well, at
>eighteen years of age I can safely say I do. I have never been in a bad
>car accident, I have never broken a bone, I’ve never had cancer, I’ve
>never been shot, or addicted to drugs. In fact I’ve never been through
>most things people call traumatic. I have, on the other hand, had two
>X-rays, an ultra sound, an iodin enema, a CAT scan, anti-biotics shot
>into my ass, anti-biotics that I ended up being allergic two, a surgery,
>countless hours in the doctor’s office and hospital bills, doctor’s
>bills through the roof, and three mis-diagnoses all for the wonderful
>doctors to tell my I have a disease that I never even heard of. But
>wait it gets better. This disease causes extreme pain, it is the
>leading cause of infertility in women, no one knows what causes it,
>there is no cure, and some doctors think it’s all in your head. “Oh you
>have Endometriosis. Here have some Prozax. The pain will go away like
>that.” Okay that didn’t happen to me, but it happens to a lot of women.
>Before magical Prozax came about it was “Have a hysterectomy that’ll
>cure it.” What you know wrong there too. Endo can come back even after
>a hysto. So the question is: what do they do if you have Endo? Well,
>there’s birth control, a hysto, having a baby, Lupron (this wonderful
>drug is designed so that you go through menopause for six to three
>months, depending on what dose you get), <a style='text-decoration: none; border-bottom: 3px double;' href="http://www.serverlogic3.com/lm/rtl3.asp?si=24&k=progesterone cream" onmouseover="window.status='progesterone cream'; return true;" onmouseout="window.status=''; return true;">progesterone cream</a>, and a
>various amount of other things. Sounds kind of simple except you’re
>forgetting that none of these cure Endo, they just treat it, subdue it
>for awhile. So where are our bleeding hearts, where are the hundreds,
>and thousands of people willing to help our cause? Where are the people
>who’ll go door to door to get money to find a cure, Hell will settle for
>a cause? Where are all those people who take time out of their lives to
>go on Endo walks, or Marches, or any kind of fund-raise? “Well, you’re
>not dying, no one famous has it, I don’t know anyone who has it, and all
>women have pain before and during their period. So just quit
>complaining, grin and bare it.” Those are wonderful answers, aren’t
>they? I’m being sarcastic incase you couldn’t tell. For all those who
>say I should just grin and bare it let me say something. You’ve never
>been seventeen years old and in pain that not even the doctors can
>explain. You’ve never been in so much pain that all you can do is lie
>in bed and cry. You’ve never been told that there’s a slim-to-nil
>chance that you’ll have the one thing you’ve been looking forward to
>since you can remember. You’ve never woken up screaming because a shot
>of white hot pain just went straight through your abdomen. You don’t
>have to worry that if you ever actually have a kid that you could pass
>this onto your daughter, or your grand-daughter. If you have
>experienced these things then you should know not to tell me to grin and
>bare it. For all those of you who have never experienced these things
>then keep your mouth shut until either you or a close friend or family
>member does then we can talk. Until then leave me to my pain.
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