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Re: THE TRUTH BEHIND PAIN: A WOMAN WITH ENDO.
From: Amie (anonymous@obgyn.net)
Sat Mar 19 01:17:49 2005
Jenni, i'm sorry to hear about all of your pain, i too am 18 and having
extramlly simmular experinces as you are. on top of all of this my body
decised to bluid up an inncoline resistance so now i have to fight the
endocrinologest on top of all of this other shit! if thats not enoguh to
make you PO'ed, i've missed over a month of school beacues of this. i
recenlly had a Laparoscopy procedure done, and i'm hoping that will end
my pain for now. i'm on birth control as well as all the other pills i
can think of. but wait its going to be put to the test in less than 5
days, my birth control pills tell me i'm going to be getting my peroid
very soon. so wish me luck. and i'll be thinking of you! I hope things
start looking up for you as well, and if u ever need someone to talk to
you can e-mail me at lovebox73@hotmail.com . .but make sure u put
something like ATT: Aj, or Jenni or something like that.... good luck,
stay strong kido!
sincerlly Aj (amie)
At Sat, 19 Mar 2005, Jenni wrote:
>
>Many people will brag "You don't know the meaning of pain." Well, at
>eighteen years of age I can safely say I do. I have never been in a bad
>car accident, I have never broken a bone, I’ve never had cancer, I’ve
>never been shot, or addicted to drugs. In fact I’ve never been through
>most things people call traumatic. I have, on the other hand, had two
>X-rays, an ultra sound, an iodin enema, a CAT scan, anti-biotics shot
>into my ass, anti-biotics that I ended up being allergic two, a surgery,
>countless hours in the doctor’s office and hospital bills, doctor’s
>bills through the roof, and three mis-diagnoses all for the wonderful
>doctors to tell my I have a disease that I never even heard of. But
>wait it gets better. This disease causes extreme pain, it is the
>leading cause of infertility in women, no one knows what causes it,
>there is no cure, and some doctors think it’s all in your head. “Oh you
>have Endometriosis. Here have some Prozax. The pain will go away like
>that.” Okay that didn’t happen to me, but it happens to a lot of women.
>Before magical Prozax came about it was “Have a hysterectomy that’ll
>cure it.” What you know wrong there too. Endo can come back even after
>a hysto. So the question is: what do they do if you have Endo? Well,
>there’s birth control, a hysto, having a baby, Lupron (this wonderful
>drug is designed so that you go through menopause for six to three
>months, depending on what dose you get), progesterone cream, and a
>various amount of other things. Sounds kind of simple except you’re
>forgetting that none of these cure Endo, they just treat it, subdue it
>for awhile. So where are our bleeding hearts, where are the hundreds,
>and thousands of people willing to help our cause? Where are the people
>who’ll go door to door to get money to find a cure, Hell will settle for
>a cause? Where are all those people who take time out of their lives to
>go on Endo walks, or Marches, or any kind of fund-raise? “Well, you’re
>not dying, no one famous has it, I don’t know anyone who has it, and all
>women have pain before and during their period. So just quit
>complaining, grin and bare it.” Those are wonderful answers, aren’t
>they? I’m being sarcastic incase you couldn’t tell. For all those who
>say I should just grin and bare it let me say something. You’ve never
>been seventeen years old and in pain that not even the doctors can
>explain. You’ve never been in so much pain that all you can do is lie
>in bed and cry. You’ve never been told that there’s a slim-to-nil
>chance that you’ll have the one thing you’ve been looking forward to
>since you can remember. You’ve never woken up screaming because a shot
>of white hot pain just went straight through your abdomen. You don’t
>have to worry that if you ever actually have a kid that you could pass
>this onto your daughter, or your grand-daughter. If you have
>experienced these things then you should know not to tell me to grin and
>bare it. For all those of you who have never experienced these things
>then keep your mouth shut until either you or a close friend or family
>member does then we can talk. Until then leave me to my pain.
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