ENDO Messages for March, 2005: Re: adenomyosis

Re: adenomyosis

From: anonymous (anonymous@obgyn.net)
Fri Mar 18 16:31:09 2005

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In reply to: Frustr: "adenomyosis"

I was diagnosed with Adenomyosis last year upon Hysterectomy. I am 29 years of age with a long standing history of Endometriosis and irregular bleeding. I was blessed to have two beautiful children before I endured my Hysterectomy. From what I understand there are no true treatments for Adeno with the exception of removal of the uterus. There are options, but they are in many cases less helpful than even the limited ones that are used for Endo. It was a huge decision to have the surgery, but for me it had come to a point where I knew in my heart I wanted a better quality of life for myself and my children. I had struggled so much to become pregnant through years of infertility and I wanted to be able to care for my children the way that I had hoped, fully and completely. As sick as I was I could not be the Mom or the Wife that I wanted to be, and thus I made the very difficult decision. Looking back I do not regret it, and my recovery was frought with complications. Despite all of this, I am grateful that I had the surgery and that it gave me a new beginning. In terms of medical treatment and Specialists I know only of a very good clinic in Vancouver, British Columbia through UBC and Vancouver Hospital. The UBC Centre for Reproductive Health has Specialists in Endometriosis and related conditions. I know that it is a distance from where you are and don't know what you may feel about that, but thought I would offer it up any way. I was told not to try the Hysterosalpingogram as it would be especially painful and not likely to yield any further information of value. I trust it is a personal and professional decision of your own physician though. In terms of MRI and CT I have heard that they offer a view of soft tissue and may help in confirmation of Adeno. I have also read that sometimes transvaginal ultrasound helps identify Adeno. I am so grateful that I had a skilled and compassionate surgeon to help me through, as the decision and the journey are not easy...but not impossible to overcome either. I wish you the very best.

At Thu, 17 Mar 2005, Frustr wrote: >
>Hi all,
>
>My wife was just diagnosed with adenomyosis by US in Mt. Sinai hospital
>in Toronto.
>
>My wife is 36 yo. She delivered our son by C-S 13 month ago. She had 2
>prevous pregnancies with 2 D&Cs after each one (don't ask). Her periods
>started almost right after the c-s even though she was breastfeeding.
>The periods became increasingly painfull with extensive bleeding. Last
>month she was crying from pain :-(
>She's anemic - according to the blood work.
>She's taking iron (ferrous fumerate) 200 mg daily.
>
>She finally met with gyn dr. He said - you'll need hysterectomy one
>day, but here's cyclokapron to reduce the bleeding. Will it help with
>the pain? He says - no.
>
>We'd like to have more kids, especially considering looming
>hysterectomy.
>
>1. What about other drugs, like Ponstan?
>We really don't like Cyclokapron possible complications, btw gyn dr
>didn't bother mentioning them. And he didn't say anything about other
>drugs, like contraceptive pills etc.
>
>2. Where do we get best possible treatment for this conditiong in
>Toronto? Canadian health care can be quite frustrating at times.
>
>3. Should we get MRI? Gyn dr sent us to Hysterosonogram (If I am not
>mistaken - US with liquid in uterus). I read adenomyosis goes with
>other bad things together - will MRI help to giagnose them?
>
>Thanks a lot.

Next message: MARE: "Re: Is a solid/complex cystic structure in the left adnexa means ovary cancer?"
Previous message: Shannon: "Re: Beyond Frustrated"
In reply to: Frustr: "adenomyosis"

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