Re: HELP
From: ann (anonymous@obgyn.net)
Thu Mar 10 22:31:36 2005
Hello,
The two specialists were Dr. Cook and the other was the Endo Center in
GA. I was impressed with both , but for whatever reason, I chose Dr.
Cook. They requested a very thorough questionare be completed prior to
the phone interview with Dr. Cook.
I mailed my case history to both locations on a monday morning. On
wednesday, two days later, I got a call from Michelle in Dr. Cooks
office. She explained how they worked and at that point set up the date
for the phone interview. Dr. Albee did get back tome via letter and
recommended the same surgical action, but I was just so impressed with
the way the other office worked that I chose them.
I too tried 6 months of Lupron. The total experience for me was not
good. The first 3 weeks after the Lupron Depot (3 month long injection)
I felt horrible and actually had to go back on vicaprofen. After that,
I did feel great until the 3 months were up. The second shot was a
totally different story. The side effects were 100 times worse than the
endo pain I had had.
Good news is that when I decided to go on the Lupron, I cancelled a
surgery date for a full hysterectomy with my GYN. In the end, I did
have a supra-cervical hysterectomy, but kept my right ovary and tube. No
HRT required.
Please feel free to email me any additional questons.
samdkosche@cox.net.
Also remember that there is never a "perfect" time to seek advice. With
technology the way it is, seek out any and all info you can to help
yourself. You're worth it. I made that bold move and told my husband
that I had to do something NOW!
Good luck,
Ann
At Thu, 10 Mar 2005, Shannon wrote:
>
>At Thu, 10 Mar 2005, ann wrote:
>>
>>HELLO,
>>
>>WHEN I READ THIS POSTING, I JUST HAD TO RESPOND BECAUSE I CAN FEEL YOUR
>>PAIN AND FRUSTRATION. THE TIME, COST, EFFORT IS EXHAUSTING, BUT YOU ARE
>>NOT ALONE.
>>
>>I AM NOT A DR OR AN EXPERT, JUST A WOMAN WHO HAS ENDO LIKE YOURSELF.
>>PLEASE CONSIDER CONTACTING A SPECIALIST. I DID THIS AND HAVE HAD AN
>>INCREDIBLE EXPERIENCE THAT I JUST HAVE TO SHARE WITH OTHERS.
>>
>>THERE ARE SPECIALISTS OUT THERE AND THEY CAN BE FOUND VIA SEARCHES ON
>>THE INTERNET. LONG STORY SHORT, I DID MY HOMEWORK, SENT MY CASE HISTORY
>>OUT TO TWO SPECIALISTS FOR THEIR NO COST REVIEW. FROM THERE, I CHOSE
>>ONE AND HAD SURGERY THIS PAST DECEMBER. THIS WAS MY 4TH LAP, BUT MY
>>FIRST EXCISION SURGERY. I HAVE BEEN ENDO PAIN FREE FOR 3 MONTHS AND I
>>DID NOT HAVE TO HAVE A COMPLETE HYSTERECTOMY. THIS IS NOT A CURE!!
>>
>>I HAD MY SUCCESS WITH DR. ANDREW COOK IN LOS GATOS, CA. THIS WAS A
>>HUGE DECISION SINCE I LIVE IN VIRGINIA AND INITIALLY MY HMO DID NOT
>>ACCEPT THE SURGERY. IN THE END, THEY DID PICK UP OVER 50% OF THE COST
>>AND IT WAS WORTH THE FIGHT.
>>
>>PLEASE LOOK BACK IN THE DECEMBER 2004 POSTINGS. IT WOULD HAVE BEEN FROM
>>ABOUT THE 14TH OR 15TH. DR. COOK WILL REVIEW YOUR CASE HISTORY AT NO
>>CHARGE, SO IT'S WORTH A SHOT. HE HELPED ME AND IT WAS INCREDIBLE THE
>>WAY HIS OFFICE TREATS ITS PATIENTS. THEY FOCUS ON YOU AND YOU ALONE
>>WHEN YOU ARE THERE. ANOTHER EXAMPLE WAS THIS PAST WEEK. I HAD A
>>MEDICATION QUESTION AND WHEN I CALLED, I WAS PUT THROUGH RIGHT AWAY TO
>>THE RN AND HAD MY ANSWER WITHIN 10 MINUTES. NO WAIT FOR A RETURN CALL.
>>
>>AGAIN, NO ONE DR OR METHOD IS PERFECT. ALL I WANTED TO GET ACROSS IS
>>THE SATISFACTION I RECEIVED BY PURSUING THIS MD.
>>
>>BEST OF LUCK AND KEEP US POSTED!
>>ANN KOSCHE
>>VIRGINIA
>
>Ann:
>
>I live in southern VA and my husband is military. I found a great place
>that specializes in endo. in Atlanta, GA. The founder of the center
>had endo., herself, for 20 years. I am trying to get there, but my
>husband is deploying soon. Do you think that if I tell them the
>situation that they will help me out in getting there? Military doctors,
>here, are not specialized in what I need done. I have had endo. since
>12 years old and am almost 23. I want my life back. I was just
>diagnosed w/ it last month. They have me on lupron injections. Though
>the injections are helping me beyone words, it is merely a bandaid. The
>side effects that I am getting from the injection are horrible. What
>are your thoughts since you have traveled to another state to have this
>done? Thank you very much.
>>
>>At Thu, 10 Mar 2005, rachel wrote:
>>>
>>>Hello,
>>>I know exactly what you're going through! I'm doing the same thing only
>>>i'm in ohio. Ive been to 4 docs in a month and its all been a waste of
>>>money! Kniwn of them have a clue! The last one told me well this disease
>>>isnt that wide spread in fact its kinda rare. Well the flag definitely
>>>rose at that point because thats so untrue. I wish you luck and dont
>>>let them bully you cause trust me they try as you probably very well
>>>know! The bottom line is most of these doc know only what they learned
>>>in a text book 10 or 15 years ago. If you happen to find a good doc let
>>>me know i'm willing to travel.
>>> Rachel
>>>
>>>At Thu, 10 Mar 2005, Jennifer wrote:
>>>>
>>>>I HAVE ENDOMITRIOSIS AND i HAVE HAD SEVERAL PROBLEMS FINDING A DOCTOR
>>>>THAT WILL HELP ME AT ON POINT THEY PUT ME ON LUPRON FOR 6MONTHS AND i
>>>>BLEED THE WHOLE TIME AND THE JUST KEPT SAYING OOH HANG IN THERE AND THEN
>>>>THEY PUT ME ON DEPO PREVARA AND i BLEED FOR ANOTHER 3 MONTHS AND NOW THE
>>>>DOCTER A DIFFRENT ON E WANTS TO KEEP ME ON THIS PILL THAT i HAVE BEEN ON
>>>>FOR A COUPLE WEEKS AND HAVEN'T STOPPED BLEEDING YET AND SHE WANTS ME TO
>>>>GIVE IT 3 MONTHS i REALLY NEED HELP FINDING A DOCTER THAT HAS A CLUE AS
>>>>TO WHAT'S GOING ON AND HOW TO TREAT MY CONDITION I LIV EIN VERMONT AND i
>>>>CAN NOT SEEM TO FIND ONE IF ANY ONE HAS AYNY IDEAs or knows a docter
>>>>that has aclue please e-mail me asap. Thank You so much
>>>>
>>>>--
>>>>sincerely Jen
>>>>
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