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Re: Lupron for extended time, side effects and long term problemsFrom: anonymous@obgyn.netMon Feb 28 09:31:17 2005
Hi, Joanne, I just got done with a six month treatment of Lupron, and it was the first thing that I've ever taken that worked as well as it did. The side effects for me were minimal. I have been on 1600mg of Calcium in an effort to strengthen my bones again, and I haven't started my period again. (My last shot was Dec. 15th, 2004). The Lupron helped me more than anything else I've EVER taken! That being said, I'm 27 years old, and was offered the same drug at 18, and refused it. I would not take that decision back, even now. I don't think that a young girl should be put into menopause. I believe that at that age, your daughter's body is still growing and maturing and balancing its hormone levels out. The Lupron could be worse than throwing a wrench into the gears here! I've been dealing with endo pain since about 12 years old, and have been on many different kinds of birth control and anti-inflammatories in an attempt to control it. I've had some success with these things, and bought myself 15 years before choosing to take the Lupron. I can't say that menopause would or wouldn't have helped me back then, but my gut tells me that menopause for a 15 year old girl is not a good idea. I'm sure she's tried these, but here are a few things that helped me through the pain: VERY hot heating pads NO CAFFEINE! Lots of rest Loose clothing Eating as much as possible (not over-eating, but having food in the belly does help to keep energy levels up) when I was younger (and still today) the last thing I feel like doing when I'm in that kind of pain is eat anything, but not giving your body energy makes the pain worse. Anti-depressants (seratonin boosters help your brain to deal with consistent pain, by replenishing the seratonin supply. Not to mention the fact that hormones cause forms of depression, and constant pain will as well. It's not a bad idea to look in to, and it's probably less traumatic than menopause would be) Anti-inflammatories pain pills (difficult to get, and dangerous in terms of addiction, but effective) Hot tea sometimes helps Some women here have suggested Ice for the pain, though I haven't tried that, it does make sense that it could help, if the problem is inflammation. I hope that your daughter feels better soon. Keep in mind that there is no cure for endometriosis. Not Lupron, not Birth Control, not surgery, not a hysterectomy, not anything so far. Anything that you do at this point, if your daughter does have endo, is pretty much buying her time before she eventually goes in for surgery, or potentially on Lupron. As you'll probably hear many times, laperoscopic surgery is currently the only way to diagnose endometriosis, and without a positive diagnosis, I wouldn't risk the potential side effects of Lupron. (Keep in mind that Lupron helped me immensely! BUT, I'm 12 years older than your daughter, and my hormones are pretty much where they are going to be. The risks of me taking the Lupron are probably less than they would be for a 15 year old girl). Anyone take Lupron at 15 w/o drastic side effects? Good Luck! Keep us posted! Julie
At Sun, 27 Feb 2005, Joanne wrote:
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