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Re: Lupron for extended time, side effects and long term problemsFrom: Shannon (anonymous@obgyn.net)Sun Feb 27 14:50:14 2005
At Sun, 27 Feb 2005, D.N. wrote: > >Hi Joanne, > >I have never been on Lupron, but it was suggested to me at one point >after having a hysterectomy and almost both of my ovaries removed (I >have ovarian remnant syndrome). I am not a youngster, but I declined >Lupron because of the side-effects. > >I have heard that some docs are recommending using Lupron before doing >surgery to see if it helps improve the symptoms. I can't say if that is >a good idea or not. I would just be very wary, especially with a 15 >year old girl. Endometriosis really puts us in a Catch-22. We need to >know if that is what we have, but then surgery can cause its own >problems. Especially being so young, she may face multiple surgeries, >and that is what the docs are probably thinking. The more surgeries, >the more adhesions. On the other hand, taking a drug that causes >menopausal type symptoms and possible bone loss in a young girl- is that >acceptable? All I can suggest is getting several different opinions. Not >just from docs in the same group. Perhaps seek out a reproductive >endocrinologist or someone who specializes in endo, which is not always >easy to find. > >Personally, it is my gut feeling that a laparscopy should be done to see >what is going on. I was misdiagnosed with IBS for several years before >I found out for sure it was endo at the time of my hysterectomy for >fibroids. For me, the misdiagnosis just delayed getting the proper >treatment. > >Sometimes they are using birth control pills continuously and that might >be an easier route to try before doing Lupron. > >I hope this info helps. Best wishes to you and your daughter. > >-- >D.N. > >At Sun, 27 Feb 2005, Joanne wrote: >> >>Sunday, 2/27/05... I am the mother of a 15 year old girl who I think >>has endometriosis. They are recommending Lupron, without a laperoscopy, >>to see if it helps. Severe stomach pain, bad cramps at period, at >>ovulation, and latelly all the time. Pain when she eats, pain with >>bowel movements. She's been treated for IBS for years, but getting >>worse. >> >>How are you now? Looking back, how was Lupron, and did it help? Side >>effects? >> >>Thanks...
Make sure that if your daughter is on birth control pills continously,
that she doesn't drink or smoke. Smoking in itself causes bone loss.
Lupron has made me tired, irritable, and depressed and I wonder why I
have to trade one health problem for the possibility of something else.
I was diagnosed with ulcerative colitis as the symptoms I have match
that disease, but in actuality I have endo. Make sure you and your
daughter know all the facts before you have her on anything. Even
constant birth control pills are not good for the woman body. I am only
22 and have been dealing with this since I was 12. It is miserable.
Educate yourself and your daughter. I have a website that I found to be
most insightful that gives you many different alternatives to severe
surgeries. Also, the only way to definitively diagnose endo. is to
have a laporoscopy done. The website is
http://www.gyndr.com/endometriosis.php. Let me know if this site helps you.
Good luck and keep us all up to date on your daughter.
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