ENDO Messages for February, 2005: Re: Lupron for extended time, side effects and long term problems

Re: Lupron for extended time, side effects and long term problems

From: D.N. (anonymous@obgyn.net)
Sun Feb 27 12:52:53 2005

Messages sorted by: [ date ][ thread ][ subject ][ author ]
Next message: Julie: "Re: Hystorectomy due to Endo"
Previous message: Joanne: "Re: Lupron for extended time, side effects and long term problems"
In reply to: Joanne: "Re: Lupron for extended time, side effects and long term problems"
Next in thread: Shannon: "Re: Lupron for extended time, side effects and long term problems"
Reply: Shannon: "Re: Lupron for extended time, side effects and long term problems"

Hi Joanne,

I have never been on Lupron, but it was suggested to me at one point after having a hysterectomy and almost both of my ovaries removed (I have ovarian remnant syndrome). I am not a youngster, but I declined Lupron because of the side-effects.

I have heard that some docs are recommending using Lupron before doing surgery to see if it helps improve the symptoms. I can't say if that is a good idea or not. I would just be very wary, especially with a 15 year old girl. Endometriosis really puts us in a Catch-22. We need to know if that is what we have, but then surgery can cause its own problems. Especially being so young, she may face multiple surgeries, and that is what the docs are probably thinking. The more surgeries, the more adhesions. On the other hand, taking a drug that causes menopausal type symptoms and possible bone loss in a young girl- is that acceptable? All I can suggest is getting several different opinions. Not just from docs in the same group. Perhaps seek out a reproductive endocrinologist or someone who specializes in endo, which is not always easy to find.

Personally, it is my gut feeling that a laparscopy should be done to see what is going on. I was misdiagnosed with IBS for several years before I found out for sure it was endo at the time of my hysterectomy for fibroids. For me, the misdiagnosis just delayed getting the proper treatment.

Sometimes they are using birth control pills continuously and that might be an easier route to try before doing Lupron.

I hope this info helps. Best wishes to you and your daughter.

--
D.N.

At Sun, 27 Feb 2005, Joanne wrote:
>
>Sunday, 2/27/05...  I am the mother of a 15 year old girl who I think
>has endometriosis.  They are recommending Lupron, without a laperoscopy,
>to see if it helps.  Severe stomach pain, bad cramps at period, at
>ovulation, and latelly all the time.  Pain when she eats, pain with
>bowel movements.  She's been treated for IBS for years, but getting
>worse.
>
>How are you now? Looking back, how was Lupron, and did it help? Side
>effects?
>
>Thanks...
>
>At Fri, 14 Dec 2001, DC wrote:
>>
>>Hello all,
>>This is my second time on Lupron.  My new doctor says that I could stay
>>on it for years! However, as we all know the FDA only approves it or
>>recommends that one should only be on it for 6 months.  Have any of you
>>been on Lupron for more than 6 months, if yes, how long? I have only
>>been on it for 4 months, going on my 5th in two weeks.  Please let me
>>know how you feel about being on it for years.  By the way, I really
>>don't mind being on Lupron.  I really don't have hot flashes or night
>>sweats.  I have dryness and no sex drive.  I like being on Lupron more
>>than being on the BCP (which I hate!)I am, however really afraid of
>>osteoporosis! If any of you could let me know your feelings on this
>>matter, let me know.  I am taking calcium supplements to help prevent
>>it.
>>        Take care, DC
>>
>>--
>>DC
>>

Next message: Julie: "Re: Hystorectomy due to Endo"
Previous message: Joanne: "Re: Lupron for extended time, side effects and long term problems"
In reply to: Joanne: "Re: Lupron for extended time, side effects and long term problems"
Next in thread: Shannon: "Re: Lupron for extended time, side effects and long term problems"
Reply: Shannon: "Re: Lupron for extended time, side effects and long term problems"

use when must restrict search to only the endometriosis forum...
Enter search keywords:
	Returns per screen: Require all keywords: