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Re: New to EndoFrom: Shannon (anonymous@obgyn.net)Sat Feb 26 16:56:29 2005
At Sat, 19 Feb 2005, Weebs wrote: > >Hi everyone. > >I am going in for my first lap next Wed. I have read up on it >extensivly and both my dr. and I feel that endo is the cause of most of >my problems. I have had a history of ovarian cysts and pain during >sexual intercourse. Quite a few years ago, I suddenly had horrible pain >on the right side of my pelvic area along with uncontrolable vomitting. >I was taken to an urgent care, which in turn sent me right into the ER >because they thought my appendix burst. After being there for sometime >and being examined, I was told to see my regular obgyn because they >suspected I had pelvic inflamatory disease. After going to my obgyn, I >was told I had nothing but a minor cyst burst and was recommended to go >on birth control. I did for a few months but I couldn't handle the >birth control and stoppped taking it. After getting new health >insurance and a new obgyn, I was given an ultersound that showed I did >have a small managable cysts on both my ovaries. The obgyn decided that >the problem was probably a cyst that ruptured and I should be fine from >then on out. Which I was, until recently. Pain during sex came back up >once again and my ovaries hurt like hell (now my left one is giving me >some shooting pain at times). After a NEW obgyn and another ultersound, >it was shown I had a large mass in or near my left ovary (and a tiny >functionanl cyst on my right). They treated me with a 10 day supply of >provera and I was on my way. Until a few months ago, when the pain came >back once again! Now 2 ultersounds later, my obgyn is saying I might >have endo (I have other symptoms too...bladder infections in which the >dr. told me I didn't have one....that's has happened 3-4 times now.... >pain when bladder is full, the feeling of soemthing still in there after >I poop, sharp pain on left side during sex, pain in pelvic area >during/after sex.) The obgyn also said that there is a mass in or on my >left ovary still.... > >So, on to the next step. The Lap. I'm pretty anxious about it. I'm >not sure what to expect, pain wise, afterwards. I've never had stiches >or gone in for any surgery before. Any help on what to expect aferwards >would be great. Thx Hi! My name is Shannon and I am 22 years old. I have had the most horrific pelvic pain since I was 12 and I will be 23 soon. I have basically been used as a lab rat. I have had sonograms, colonoscopies, cat scans, x rays, blood tests, and a lower and upper G.I. Every time a doctor has ruled out the possibilities of something I may have, they kept telling me that I may have endometriosis. I have not had a laporoscopy yet, as the new doctor I have gone to see does not wish to pre form this medical procedure on me. Instead she has given me a Lupron injection, for those of you who don't know what they are, the injections put you in a state of menopause so that your hormones no longer act. This series can only be done for a total of 6 months and long term side effects can lead to a severe loss of bone in women. I have felt like I was going crazy for years as the doctors continously told me "the pain" was all in my head. It is so very discouraging. I am in the process of trying to get another doctor that specializes in endometriosis. Every symptom of having this life altering disease, I have and the older I get the worse the symptoms. Having this makes you, at times, think that you are totally going insane. As women, we can't take "it's all in your head", or "there is nothing wrong with you", from doctors. We must persist in getting a correct diagnoses and correct treatments for this disease. Endometriosis runs in my family. I seem to lose hope so many days. I lose hope that I will lead a normal life. I don't want children right now, nor does my husband, but I can honestly testify that I would much rather have surgery and lead a productive life than to be left in pain to have a child later. It, to me, is just not worth the outcome. If any of you out there have any thoughts, any support, please write back. My husband tries to understand what I am going through, but truly has no idea. Thank you all for reading my entry and god bless all of you in pain.
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