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Re: Hystorectomy due to Endo - thanks Tracy
From: Melisa (anonymous@obgyn.net)
Fri Feb 25 07:57:12 2005
Tracy -
Thank you for sharing your story. I've got so many questions for my dr.
I'm going to check out the site you wrote down. All the stuff I've
found looking up hystorectomy has been aweful and scarry. Until I found
this endo site. I can actually talk to people who have the same thing
as I do and listen to there outcomes to try to make my own descion.
Thank you for sharing.
At Thu, 24 Feb 2005, Tracy wrote:
>
>Melisa and ladies,
>I am also a 30 year old with 2 children ages 4 & 6. I was diaganosed
>with endo and ademo by way of a lap on Oct 1, 2004. My doc and I
>decided on a hysterectomy. My husband and I were already decided on not
>having any more children so this seemed like the logical step. My
>hysterectomy took place on Dec 8, 2004. I had my cervix and uterus
>removed. I kept both my ovaries due to heart disease (cannot do HRT or
>BC). On Dec 9, 2004 I had to have emergency surgery to remove my right
>ovary due to internal bleeding (long story). No problem because my left
>ovary was still functioning. It was a long, long, recovery! I feel it
>was definitely worth it. I feel great now. Since I kept one ovary I
>don't experience any menopausal symptoms and to top it off I will never
>have a period again!!!! I still experience minor menstral symptoms when
>I would normally have a period but it's mainly just moodiness(no
>cramps!!). I know that by keeping one ovary I might not get rid of the
>endo but it's gone for now. If I have any problems down the road I can
>always have them go in and remove the left ovary. I just wanted to
>avoid meno as long as I can. I had an abdominal incision (about 4
>inches long). You can also have this done vaginally. I opted not too
>because it's easier for the doc to look for more endo and remove it
>while he's in there if it's done abdominally. They can also get a
>better look at your other organs. Most of my pain was related to the
>ademo. I was also diaganosed with IBS, but it's gone now too. For
>anyone considering a hysterectomy I recommend this website
>http://www.hystersisters.com It was a lifesaver for me. You can talk to girls
>who've had one and also girls who are going to have one. The recovery
>is very difficult, pain meds are a must if you want to make it through
>it all. At first I wasn't sure if it was worth it but now that I'm
>feeling normal again I feel that it definitely was. If any of you have
>any questions feel free to ask. Hope this helps.
>Tracy
>
>At Thu, 24 Feb 2005, Melisa wrote:
>>
>>hello all- I'm glad to see I'm not the only one with all these problems.
>>Some days I swear I could go insane. I'm a 30year old mother of 2 that
>>has been dealing with this for the past 3 years and am going in on March
>>8th to talk to my dr about scheduling a Hystorectomy. I had a lap done
>>in April of last year and I only got relief for 3 months. I've always
>>had trouble with BC Pills, but tried them again after the lap didn't
>>work. I did see a little relief but they turned me into the wicked
>>witch and I had to get off them. It was really bad. I was just
>>wondering if anyone else has had the hystorectomy and what the side
>>effect are. I've read about the side effects, but right now I have most
>>of them with my endo (major fatigue, no sex drive). As for other other
>>posts with how to deal with the pain - what works me is rest and I take
>>800mg of ibuprophan every 6hrs and I add tylanol every 4 yrs. I usually
>>do that on my worst days. Thanks for reading.
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