Re: Hystorectomy due to Endo
From: Dianne (anonymous@obgyn.net)
Thu Feb 24 13:26:23 2005
Melissa,
If you're tired and kind of foggy and get that unattached feeling, that
could be depression. I had anxiety and insomnia and then the unattached
feeling came. When I found a drug that worked for me (Paxil), I was a
whole new person. I knew that I was getting better (and how messed up I
had been) when I walked outside and noticed how green the grass was and
the sky blue and I just felt like my senses awakened. It was amazing. I
did eventually get off of the Paxil. I just hate taking so many drugs
and it started making me gain weight. I get that unattached feeling
once in a while still, but it's not constant.
At Thu, 24 Feb 2005, Melisa wrote:
>
>Hi Dianne-
>
>I never really thought about taking an anti-depressant to help with
>that. It helps? It doesn't seem to be anxiety with me (at least I don't
>think so) It's just that I'm so tired everything is just foggy and all I
>think about is getting to bed and sleeping or just sitting down and
>doing nothing. I'll add the iron check too my list. I do take a one a
>day vitamin, but that's an idea on the tiredness too.
>
>At Thu, 24 Feb 2005, Dianne wrote:
>>
>>Melissa,
>>
>>I'm the same way with the housework and stuff. I'm not extremely tired
>>most of the time, but the pain just keeps me from doing normal things. I
>>also get the out of body experience. It's anxiety that does that to
>>you. I've done a year of antidepressants and cognitive behavioral
>>therapy and have xanax to take the edge off when it gets bad. Now, I
>>just recognize it as anxiety and panic and I can sort of control it
>>getting the best of me.
>>
>>A thyroid check would be a good idea for you. Also, do you get enough
>>iron? If you don't, that would make you tired also.
>>
>>--
>>Dianne
>>
>>At Thu, 24 Feb 2005, Melisa wrote:
>>>
>>>>From what I found out so far about the hyst through the bellybutton is
>>>not all dr's do it. I think it's just too new. I've heard the hospital
>>>that I'd have it done at does do it that way so I'm hoping. I'll let
>>>you know what I found out. Wow you've had a lot of laps done. I'm also
>>>to the point where I can't afford to go in every 3 months to have major
>>>surgery done. The last lap I had cost over $2000 and I even have
>>>insurance. I figure if I can get this done and have some relief, no
>>>periods, hopefully get my energy and sex drive back it will definately
>>>be a win win for me. I'm not sure if my expectations are too high or
>>>not, but that's what I'm looking for. I have a 7year old and 3 year old
>>>and a wonderful husband and I hate feeling like I'm not doing my share
>>>of the work because I'm always falling asleep at 7pm. Currently I work
>>>from 8-5pm, pick up the kids from day care and get home about 5:45pm,
>>>fix dinner, do dishes (if I'm up to it), then I'm sooo tired I can
>>>hardly function. I've figured out of a month I usually have 1 good week
>>>where I can stay up till 9:30 or so and get the cleaning and laundry and
>>>stuff taken care of. It's completely crazy. Do you have the extreme
>>>tiredness too? I was talked to my husband last night and I told him I'm
>>>living in a daze right now. It's like it's not even me kind of out of
>>>body thing. It's so hard to explain to someone who hasn't felt it. I'm
>>>going to have my thyroid checked also - do to my extreme tiredness and
>>>I'm alway cold.
>>>
>>>At Thu, 24 Feb 2005, rachel wrote:
>>>>
>>>>no problem. I had initially assumed the same thing about the lap first
>>>>but asked to make sure and found out i was wrong in my assumtion. i
>>>>dont know if they can do it through the belly button because of the
>>>>stuff being taken out. Myb they can i asked my doc about something of
>>>>that nature and he said no so i dont know if they cant or he just didnt
>>>>want to. I am at the same point you are i have tried everything else
>>>>known to man and had 3 laps in 4 years and nothing works, i as well am
>>>>tired of being sick and tired but at the same time i dont know if doing
>>>>somehitng that wont help or may not is worth it. I'm presently awaiting
>>>>a reply form a specialist in another state and either today or tommorrow
>>>>i will entering yet another study for a different drug. i guess i'm
>>>>just poponing the hyst and the chance it dont work as long as possible.
>>>> rachel
>>>>
>>>>At Thu, 24 Feb 2005, Melisa wrote:
>>>>>
>>>>>Thank you. I will add that too my list of questions. I would assume
>>>>>that they would do a lap then the hyst. but it's alway good to ask. I
>>>>>went back a few months to read other posts on this and I haven't seen
>>>>>any where they've done the hyst through the bellybutton? Has anyone had
>>>>>it done that way? That's the way I would like it done then they can
>>>>>leave the cervix and I guess you aren't down for very long? After going
>>>>>back and reading too I know that this may not cure what I have but I'm
>>>>>too the point where it seems to be the only answer for me. I'm soooo
>>>>>tired of being tired and in pain. I just want my life back.
>>>>>
>>>>>At Thu, 24 Feb 2005, rachel wrote:
>>>>>>
>>>>>>hello dear,
>>>>>>sorry to hear youre not feeling well. i'm 28 and have seen three dr's
>>>>>>very recently that think i should have a hyst. so i did some reasearch.
>>>>>>my present doc says he wont kill or remove present endo at time of hyst.
>>>>>>that it should just die off after some time. he also said theres a good
>>>>>>chance i'll still have much pain after but ive done everything lse so
>>>>>>why not. i dont like that theory. i reseaching i found that even if a
>>>>>>hyst is done if the endo is not killed and removed it can still carry
>>>>>>on! Dr. Redwine commented on this. The remaining endo can change
>>>>>>certain things into the oestrogen which feeds it. it produces its own
>>>>>>enzyme that takes care of doing this. the third post down on yesterdays
>>>>>>list comments on this in the third paragrph. it gives the exact names
>>>>>>of things. I would ask the doc when you go if theyre gonna kill and
>>>>>>remove present endo. if not is it really worth going through the misery
>>>>>>to find out it didnt help? When i go back to mine i'm taking abunch of
>>>>>>material i have found and printed from specialist and am going to make
>>>>>>him read and respond to it before making any decisions. best of luck.
>>>>>>
>>>>>>At Thu, 24 Feb 2005, Melisa wrote:
>>>>>>>
>>>>>>>hello all- I'm glad to see I'm not the only one with all these problems.
>>>>>>>Some days I swear I could go insane. I'm a 30year old mother of 2 that
>>>>>>>has been dealing with this for the past 3 years and am going in on March
>>>>>>>8th to talk to my dr about scheduling a Hystorectomy. I had a lap done
>>>>>>>in April of last year and I only got relief for 3 months. I've always
>>>>>>>had trouble with BC Pills, but tried them again after the lap didn't
>>>>>>>work. I did see a little relief but they turned me into the wicked
>>>>>>>witch and I had to get off them. It was really bad. I was just
>>>>>>>wondering if anyone else has had the hystorectomy and what the side
>>>>>>>effect are. I've read about the side effects, but right now I have most
>>>>>>>of them with my endo (major fatigue, no sex drive). As for other other
>>>>>>>posts with how to deal with the pain - what works me is rest and I take
>>>>>>>800mg of ibuprophan every 6hrs and I add tylanol every 4 yrs. I usually
>>>>>>>do that on my worst days. Thanks for reading.
>>
>>--
>>Dianne
>>
--
Dianne
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