Re: Hystorectomy due to Endo
From: Melisa (anonymous@obgyn.net)
Thu Feb 24 12:52:13 2005
Hi Rachel-
Has the insurance given you a reason why it's not covered? I'd do
somemore research in that area. Also once they give you a reason maybe
you could get a rider from you or your husbands work added on that would
cover it?
At Thu, 24 Feb 2005, rachel wrote:
>
>hi to both of you,
>
>there is lap assisted hyst. my docs against it he is alos against
>removing things through the vagina he says when i agree it will be the
>bikini cut over my csection scar so "there really wont be further
>scarring" its not the scarring i'm worried about! i have a 9yr and a 6yr
>old and the hubby of course and noone to really help out afterward when
>the hubby goes to work. he leaves before the kids go to school and gets
>back after they are home. my dad tries but he has emphzema, copd, and
>bad circulation, and asthma so i dont want to force him into feeling
>worse. But if your doc's are willing to do these procedures how you
>want than more power to ya and i reeaaallllyyyyyy hop it works for both
>of you. I know what you mean by the out of body thing its like for the
>last 3 weeks i've been in a trance. i'm here and see things going on
>around me and force myself to be part of it but just feel so far away. I
>need to figure out some sort of health coverage stuff regardless of
>whethor its a lap or a hyst. My hubbies insurance wont cover this
>stuff, my school insurance wont cover it, the state says he makes $300
>too much for any help from them, and they keep telling me theres no kind
>of emergency funding even if the docs write something saying its really
>needed, and the mortgage company refuses to share their part of the
>income. Do either of you have ideas??? I feels so screwed and dont know
>what to do.
>
>--
>Rachel
>
>At Thu, 24 Feb 2005, Melisa wrote:
>>
>>Hi Dianne-
>>
>>I never really thought about taking an anti-depressant to help with
>>that. It helps? It doesn't seem to be anxiety with me (at least I don't
>>think so) It's just that I'm so tired everything is just foggy and all I
>>think about is getting to bed and sleeping or just sitting down and
>>doing nothing. I'll add the iron check too my list. I do take a one a
>>day vitamin, but that's an idea on the tiredness too.
>>
>>At Thu, 24 Feb 2005, Dianne wrote:
>>>
>>>Melissa,
>>>
>>>I'm the same way with the housework and stuff. I'm not extremely tired
>>>most of the time, but the pain just keeps me from doing normal things. I
>>>also get the out of body experience. It's anxiety that does that to
>>>you. I've done a year of antidepressants and cognitive behavioral
>>>therapy and have xanax to take the edge off when it gets bad. Now, I
>>>just recognize it as anxiety and panic and I can sort of control it
>>>getting the best of me.
>>>
>>>A thyroid check would be a good idea for you. Also, do you get enough
>>>iron? If you don't, that would make you tired also.
>>>
>>>--
>>>Dianne
>>>
>>>At Thu, 24 Feb 2005, Melisa wrote:
>>>>
>>>>>From what I found out so far about the hyst through the bellybutton is
>>>>not all dr's do it. I think it's just too new. I've heard the hospital
>>>>that I'd have it done at does do it that way so I'm hoping. I'll let
>>>>you know what I found out. Wow you've had a lot of laps done. I'm also
>>>>to the point where I can't afford to go in every 3 months to have major
>>>>surgery done. The last lap I had cost over $2000 and I even have
>>>>insurance. I figure if I can get this done and have some relief, no
>>>>periods, hopefully get my energy and sex drive back it will definately
>>>>be a win win for me. I'm not sure if my expectations are too high or
>>>>not, but that's what I'm looking for. I have a 7year old and 3 year old
>>>>and a wonderful husband and I hate feeling like I'm not doing my share
>>>>of the work because I'm always falling asleep at 7pm. Currently I work
>>>>from 8-5pm, pick up the kids from day care and get home about 5:45pm,
>>>>fix dinner, do dishes (if I'm up to it), then I'm sooo tired I can
>>>>hardly function. I've figured out of a month I usually have 1 good week
>>>>where I can stay up till 9:30 or so and get the cleaning and laundry and
>>>>stuff taken care of. It's completely crazy. Do you have the extreme
>>>>tiredness too? I was talked to my husband last night and I told him I'm
>>>>living in a daze right now. It's like it's not even me kind of out of
>>>>body thing. It's so hard to explain to someone who hasn't felt it. I'm
>>>>going to have my thyroid checked also - do to my extreme tiredness and
>>>>I'm alway cold.
>>>>
>>>>At Thu, 24 Feb 2005, rachel wrote:
>>>>>
>>>>>no problem. I had initially assumed the same thing about the lap first
>>>>>but asked to make sure and found out i was wrong in my assumtion. i
>>>>>dont know if they can do it through the belly button because of the
>>>>>stuff being taken out. Myb they can i asked my doc about something of
>>>>>that nature and he said no so i dont know if they cant or he just didnt
>>>>>want to. I am at the same point you are i have tried everything else
>>>>>known to man and had 3 laps in 4 years and nothing works, i as well am
>>>>>tired of being sick and tired but at the same time i dont know if doing
>>>>>somehitng that wont help or may not is worth it. I'm presently awaiting
>>>>>a reply form a specialist in another state and either today or tommorrow
>>>>>i will entering yet another study for a different drug. i guess i'm
>>>>>just poponing the hyst and the chance it dont work as long as possible.
>>>>> rachel
>>>>>
>>>>>At Thu, 24 Feb 2005, Melisa wrote:
>>>>>>
>>>>>>Thank you. I will add that too my list of questions. I would assume
>>>>>>that they would do a lap then the hyst. but it's alway good to ask. I
>>>>>>went back a few months to read other posts on this and I haven't seen
>>>>>>any where they've done the hyst through the bellybutton? Has anyone had
>>>>>>it done that way? That's the way I would like it done then they can
>>>>>>leave the cervix and I guess you aren't down for very long? After going
>>>>>>back and reading too I know that this may not cure what I have but I'm
>>>>>>too the point where it seems to be the only answer for me. I'm soooo
>>>>>>tired of being tired and in pain. I just want my life back.
>>>>>>
>>>>>>At Thu, 24 Feb 2005, rachel wrote:
>>>>>>>
>>>>>>>hello dear,
>>>>>>>sorry to hear youre not feeling well. i'm 28 and have seen three dr's
>>>>>>>very recently that think i should have a hyst. so i did some reasearch.
>>>>>>>my present doc says he wont kill or remove present endo at time of hyst.
>>>>>>>that it should just die off after some time. he also said theres a good
>>>>>>>chance i'll still have much pain after but ive done everything lse so
>>>>>>>why not. i dont like that theory. i reseaching i found that even if a
>>>>>>>hyst is done if the endo is not killed and removed it can still carry
>>>>>>>on! Dr. Redwine commented on this. The remaining endo can change
>>>>>>>certain things into the oestrogen which feeds it. it produces its own
>>>>>>>enzyme that takes care of doing this. the third post down on yesterdays
>>>>>>>list comments on this in the third paragrph. it gives the exact names
>>>>>>>of things. I would ask the doc when you go if theyre gonna kill and
>>>>>>>remove present endo. if not is it really worth going through the misery
>>>>>>>to find out it didnt help? When i go back to mine i'm taking abunch of
>>>>>>>material i have found and printed from specialist and am going to make
>>>>>>>him read and respond to it before making any decisions. best of luck.
>>>>>>>
>>>>>>>At Thu, 24 Feb 2005, Melisa wrote:
>>>>>>>>
>>>>>>>>hello all- I'm glad to see I'm not the only one with all these problems.
>>>>>>>>Some days I swear I could go insane. I'm a 30year old mother of 2 that
>>>>>>>>has been dealing with this for the past 3 years and am going in on March
>>>>>>>>8th to talk to my dr about scheduling a Hystorectomy. I had a lap done
>>>>>>>>in April of last year and I only got relief for 3 months. I've always
>>>>>>>>had trouble with BC Pills, but tried them again after the lap didn't
>>>>>>>>work. I did see a little relief but they turned me into the wicked
>>>>>>>>witch and I had to get off them. It was really bad. I was just
>>>>>>>>wondering if anyone else has had the hystorectomy and what the side
>>>>>>>>effect are. I've read about the side effects, but right now I have most
>>>>>>>>of them with my endo (major fatigue, no sex drive). As for other other
>>>>>>>>posts with how to deal with the pain - what works me is rest and I take
>>>>>>>>800mg of ibuprophan every 6hrs and I add tylanol every 4 yrs. I usually
>>>>>>>>do that on my worst days. Thanks for reading.
>>>
>>>--
>>>Dianne
>>>
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)