ENDO Messages for February, 2005: Re: The H word...

Re: The H word...

From: anonymous (anonymous@obgyn.net)
Mon Feb 14 21:00:09 2005

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Previous message: holly: "Re: Update from last lap and 6 months of Lupron - exploring permanent options: Hysterectomy or continuou birth control"
In reply to: Kathy: "The H word..."

I can sure sympathize with your situation. I too was 35 when I had my full abdominal hysterectomy after years of suffering with endo. I struggled with the same decision. You have to go with your gut feelings and I don't want to sway you one way or another, but for me, it was a good decision. In the previous laps over the years, only endo that could be seen was lasered, not excised, and when I finally gave in to the pain by having a hyst, my bladder was stuck to my uterus in one big endo sheet. He had to shave the two apart. That was not seen in the laps and would have never been found unless I had an open surgery.

It took a good 6 weeks to get back to feeling close to normal. I believe I went back to work after 3 weeks. It took a few months to get my strength back to normal. It took a while to get a sex drive back, but because the pain was gone, it was really better. We didn't worry about me hurting.

I did take ERT immediately and after a few months of getting that regulated, I was fine. I did gain some weight, so you really need to pay attention to that. I felt better then I had in years. However, after 4 years, the pain returned in a variety of ways and I had another lap. Endo was found. I am now seeking the advice of an endo specialist. I am scheduled for another, and hopefully final surgery with the specialist.

Knowing what I know now, I would will still have the hyst, but I would see a specialist that does excision. I know it still isn't full proof, but it sure helps to reduce the odds of endo returning.

I hope this helps.

At Sun, 13 Feb 2005, Kathy wrote: >
>Well, I have finally come to the end of my struggle with endo and am
>going to have a hysterectomy. It has been a long and painful 10
>years,that has included all forms of treatment from hormones to surgery
>(6 of them to date). I am now suffering from a large cyst on my right
>ovary (appeared only 3 months after my last lap.!) that has grown much
>bigger over the past 6 months. I have one beautiful daughter (a total
>miracle!!) and I am pretty much ready to move on with my life and live
>pain free. But I went to the book store tonight and read a lot of scary
>stuff! Has anyone had any experience with a hyst. at age 35, what
>happened after? Did you take HRT and did you have to wait a certain
>amount of time after your surgery? Did you lose your sex drive? Was it
>"better" then if you hadn't had the surgery? I just don't want to turn
>into a hormone nightmare and I don't want to risk my health either. I
>feel like I am damned if I do and damned if I don't. Anyway, can anyone
>offer any experience? If so I will be eternally grateful! I am up for
>another ultrasound on tuesday and then I will see my doctor to sort out
>the details.
>Thank you for reading!

Next message: dj: "Exercising after lap"
Previous message: holly: "Re: Update from last lap and 6 months of Lupron - exploring permanent options: Hysterectomy or continuou birth control"
In reply to: Kathy: "The H word..."

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