Re: Prostap (or Lupron in the USA)
From: anonymous (anonymous@obgyn.net)
Tue Feb 8 19:06:28 2005
It is quite clear from Anne's message and a whole batch of others in the
past few weeks that she/they did not read or at the very least did not
remember the information about the drug therapy she is currently
undergoing. That is just plain irresponsible. Would you get in a car
with someone not knowing much about them or if they could even drive?
People are more cautious about the food they feed their pets than they
are about the things they put in their bodies.
A few weeks ago there was a ridiculous thread going where there was an
actual argument, contest really, trying to determine who had endo worse
than someone else - good grief! Endo is endo and it's not good to have.
PERIOD. We've got it, now what are we going to do about it? Continue
going from doctor to doctor trying to find the magic pill that makes it
all go away? Not going to happen, not in my lifetime, probably not in
your lifetime either so next best thing to do is share real life tried
and true practical information of what we each do that helps so that
next time you are having a bad day you can come here, look it up and
give it a try yourself and who knows, you might get lucky and it helps.
And then continue reading the research studies, participate in clinical
trials, keep logs and diaries, communicate with each other, our doctors,
the assocations, legislators and try to get some reasearch money steered
away from the "glamour funds" towards real health issues.
And just in case anyone read between the lines of the term "glamour
funds". Breast Cancer is a serious disease but it is not THE most
serious disease that the fundraiser companies would like you to think. I
wonder how much money goes to the corporate administrators of these
companies??? Heart Disease is the #1 killer of women, do you know your
blood pressure? do you know the warning signs? Lung cancer is #2, Stroke
#3.... read, learn, educate yourself then educate others.
At Tue, 8 Feb 2005, anonymous wrote:
>
>Anonymous,
>
>What part of Anne's question were you so rudely attempting to answer in
>your post? It's attitudes like yours that make me not want to post on
>this board sometimes. Just because someone's treatment isn't working or
>they're having a hard time with it doesn't mean they didn't do their
>research. I had no problem with Lupron the first time and then had a
>horrible experience the second time. I didn't 'blindly' go into
>anything. And if someone needs to vent about something that's been
>posted before or wants to ask a question that's been asked before,
>that's their perogative. Don't answer if it gets your knickers in such
>a twist. You should think about being a little nicer and a little more
>constructive in your contributions to this discussion. A lot of women
>on this board are in a lot of pain and are going through very hard
>times. They don't need attitude from you.
>
>At Tue, 8 Feb 2005, anonymous wrote:
>>
>>Doesn't anybody ask their doctors for full disclosure before accepting
>>drug therapy? Do you seriously just blindly say "ok" to whatever is
>>suggested?
>>
>>Good grief! Be the intelligent women you are and ask questions and
>>request the written information be given to you BEFORE swallowing the
>>pill or bending over for the injection.
>>
>>By refusing the second part of your treatment you will get to further
>>enjoy the hot flashes and other uncomfortable yet NORMAL and EXPECTED
>>side-effects of this drug therapy.
>>
>>It works for some women, it doesn't for others. No way to tell in
>>advance if it will or not or how severe your side-effects will be to you
>>but if you're going to begin a treatment it is usually best to see it
>>through unless you are having life-threatening or really serious
>>side-effects or other conditions arise that make continuing dangerous.
>>
>>Come on ladies, spend a few hours and search the information that is
>>available to us and then come back here and discuss it. Too many women
>>focus all of their attention here and keep recycling the same tired
>>topics with no new input. Let's see if we can use this forum to
>>actually educate and support each other and become informed patients
>>instead of complacent patients.
>>
>>At Tue, 8 Feb 2005, Anne wrote:
>>>
>>>HI
>>>
>>>Please please can someone out there tell me I'm not cracking up!!
>>>I have been on Prostap injections for the past 4 months and of which 2
>>>of them have been murder!! I have had hot flushes and terrible moods and
>>>insomnia - no sex drive too!! The doc wanted to give me HRT but I
>>>refused as I am only 29 years old and am already worried about how this
>>>drug will affect me in years to come. After my last 2 injections I will
>>>be receiveing IUI treatment once my period returns. Can anyone out
>>>there tell me if they have been successful with this treatment and give
>>>me any advice on how to give myself a better chance of conceiving??
>>>
>>>Thanks for listening!!
>>>
>>>--
>>>Anne
>>>
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