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The Making of The Documentary '' Endometriosis- The Inside Story''From: B.Browne (anonymous@obgyn.net)Mon Jan 31 08:38:04 2005
Two women, one a nurse in Australia, the other a film maker in the US in Texas had identical experiences with endo. Misdiagnosis, unbelievable pain dismissed as hypochondria, imagination, or "This is normal - put up with it". They each determined to share their experiences with other endo sufferers. They met in an internet chat room. They planned, they raised money and from their own experiences with the disease and with the help of some caring doctors and women's support groups they made a documentary film that shows women what they can expect when they get endometriosis. How well did they succeed? Here's a review from Mary Lou Ballweg, who started the US Endometriosis Association 18 years ago when she couldn't get help with her disease. "This video is so good that it simply must get out to the world.
>From the beginning of the Endometriosis Association, women and girls Anyone who listens to these stories will be moved and forever change their attitudes towards this disease. Now, in a wonderful documentary, the best video ever on endo, women tell their stories for the world. If we can get partners, friends, families, and most of all, doctors and researchers, to view this documentary we can help change the world's view of endometriosis." Mary Lou Ballweg, President Endometriosis Association Shortly after returning from DC (within a week) Jen and I both sat down to watch the documentary. I, for one, was very moved. I probably went through about a dozen tissues during the course of the video. Yes, men do cry sometimes. Just don't let out my secret :) Much of what I saw was very familiar to me, especially after having just come back from the walk and hearing all the testimonials of the women I met there. There was much information that was new to me. Particularly some of the interviews of the Endo specialists contained bits of information that I had never heard before. I think the fact that Jen and I had spent a weekend with you made the video that much more powerful for me. To get a view of the daily life for women who have more debilitating disease than Jen does was just incredible. I sat in amazement, all the while thinking "Is this how Jen's going to be in a few years?" It deeply saddened and angered me that there are so many women in so much pain and relatively little is being done about it. My respect for you and other women who have this disease has also increased dramatically. The fact that you were able to come to the US to show support for the cause shows how strong of an individual you are. I would love to see a Part II to the documentary. The more information there is out there about this disease, the better. Jeffrey M. Cox Programmer/Analyst IA Systems, Inc. A review From Carey and John Blondin ,who started Mendo and Carey's Endo Survival Kit John and I just finished watching your video. One word comes to mind for us - FANTASTIC. You all did a fabulous job in getting the REAL story of endometriosis out there. There has never, in our opinion, been a more realistic , more factual, more true to life program about endometriosis than yours. This video brought John and I both to tears several times. And watching you in surgery... man did that rip at my heart. I SO remember those feelings that you expressed without any words at the end of your surgery when the nurse was talking to you. It is a huge success in our book, Belle. Bravo to the entire team involved. Now we can't wait until your second one. Excellent job . Carey "Endometriosis. The Inside Story" a US / Australian Co-production has been highly praised by other support groups all over the world.. as the most powerful and complete film ever produced on this tricky subject. You can also Order the Video by Emailing Belle at TinkerBelles@bigpond.com We must all remember that together we can all make a huge difference... in regards to endo and its awareness and by supporting and helping each other ...to conquer and cope with this debilitating disease. May Good Health, Brighter, Happier & less painful days be with you today and always. Best Wishes to Everyone, Cheers, Belle --
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