ENDO Messages for January, 2005: Re: Help! 23 and going to have a hysto soon

Re: Help! 23 and going to have a hysto soon

From: anonymous@obgyn.net
Thu Jan 27 19:40:59 2005

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In reply to: Sara': "Re: Help! 23 and going to have a hysto soon"

At Thu, 27 Jan 2005, Sara' wrote: >
>At Mon, 24 Jan 2005, Kathy wrote:
>>
>>Hi my name is kathy and I'm 23 and I will be having a full hysto in 2
>>months and I just want someone to talk with that might beable to help me
>>with this.
>
>Hi Kathy,

I completely understand your pain, but at your age I think a hysterectomy is out of the question. First, doctors are not sure if a hysterectomy will stop the Endo. There have been reported cases of Endo coming back even when a complete hysterectomy was done. Second, research is coming out on how the reproductive organs are helping to fight other illnesses.

I found out I had Endo when I was 18 years old (I'm 36). I was told most of my pain was in my head and that pain was part of being a woman. I tried all medicines and was never told the side effects. At one point, while on Lupton, I thought I was having a nervous breakdown, I suffered panic and anxiety attacks and I was told to go see a therapist. Most OBGYN's, in my opinion, don't understand Endo and are looking for a quick solution (for them not for you).

After spending many years dealing with pain and frustration, I finally found a doctor who was willing to help me. He told me about all the side effects of all the drugs I was taking (I wasn't going crazy, these drugs cause horrible side effects). He also gave me my life back, I went through an eight hour surgery, where he cut nerves, reconstructive my reproductive organs and overall gave me my life back.

If I am able to find a doctor like him, so are you! The doctor I mentioned above is Dr. John Rock (he used to be at Emory University and is now at LSU).

Also, I no longer see an OBGYN. I only see an IVF doctor. They are more informed about Endo (since Endo are fertility are so closely related).

Good Luck and I hope this info helps you. Cece

Hi Kathy, >I understand what you are going through, and can relate.My Doctor has
>recommended a total hysterectomy as well.I am in the process of getting
>second, third,& fourth opinions and have not scheduled a date for
>surgery.I am 35 years old, and have a small child.It sounds like you
>have been through a lot,but my main concern for you is to make sure that
>you have exhausted ALL of the options available to you (medically &
>surgically) before going the hyst. route.Take as much time as possible
>to really think things through,research, and get as many opinions as
>possible first.You are so young,I don't know what your feelings are
>about children and all that, but it seems so drastic for your Doc. to
>even suggest it at age 23. I could understand if it was cancer, but
>most Docs. won't even suggest a hyst.until you are older & completely
>done with family planning.Granted, there is no cure for this disease -
>and I completely understand your frustration, and all the physical pain
>that comes with the territory, but there are other options.If nothing
>else, just make sure to research the pros. & the cons. and at the very
>least, please get another opinion before going through with the
>surgery.Feel free to email if you would like to talk more.
>Sara'
>
>--
>Sara'Fleming
>

Next message: Sharon: "Re: blocked fallop tubes- cause??"
Previous message: anonymous: "Re: Ovary pain but no visible cysts"
In reply to: Sara': "Re: Help! 23 and going to have a hysto soon"

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