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Re: Adenomyosis. Live with the pain or have Hysterectomy?From: Jayne (anonymous@obgyn.net)Wed Jan 26 12:16:21 2005
At Sat, 20 Jan 2001, cristen wrote: > >Hello I am new to this forum and would appreciate any information that >is given. > >I was diagnosed with adenomyosis in september and have been struggling >with the notion of a hysterectomy. I am only 32, but I have had this >pain for over 15 years. I have been on birth control to help with the >irregularity of my periods and the bleeding. But it is the cramping and >the painful intercourse that are the worst. I also have severe cramping >after orgasm and read here on the forum that it could be related to >adhesions, which I have also been diagnosed with. We have two boys, one >10 and the other 2. We also had a miscarriage between them at 21 weeks >(5months)a daughter that I was later told could be related to my >condition. We (mostly my husband) feel we would regret not being able >to have another child if I were to have a hysterectomy. However, the >pain has gotten a lot worse in the last four years and I am blouting and >cramping even when I am not due for or on my period. My doctor has said >that the only way to completely get rid of the pain is to have a >hysterectomy. > >I suppose what I am asking for is some support from others who have gone >through or are going through the same situation. If anyone can give >some help I thank you. > >-- >cristen gerum > Hi Cristen- I too am 32 years old. I have 4 children. My twins are three and my youngest. Since they were born, I was struggling with 15 -18 day periods with painful intercourse and break-through bleeding at any time. I had painful bowel movements, nausea, cramping pretty much every day for THREE YEARS! Enough was enough and I told my doctor to just take out my uterus. He had asked me months before if I wanted that and I said,"No." I just couldn't take it any more. A week ago Tuesday, I had my uterus removed and I am SO glad that I did it. I had c-sections with all my children so I had to have it done abdominally and the pain was VERY bad, I won't lie. But it's only one week since and I feel really good. I went yesterday to have my staples removed and my doctor told me that I definitely had adenomyosis. The only way to completely be rid of it was to take out my uterus. We were both so happy that we had made the right decision. No one that doesn't have this disease could possibly understand how painful it is. Your quality of life sucks and you keep telling yourself that it will get better. It doesn't. I hope you are well today and if you ever need to talk, I'll be here.
-- Jayne
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