ENDO Messages for January, 2005: Re: Am I the Only One??

Re: Am I the Only One??

From: Penny (anonymous@obgyn.net)
Sat Jan 22 08:37:24 2005

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In reply to: Sarah: "Am I the Only One??"

Hi Sarah, I have been receiving Lupron treatments since February, 2000. Next month will mark my 5th year anniversary. For me it has also been a wonderdrug - I have pain free for the last 4.5 years. I have a number of specialists and doctors who are monitoring my case and are aware of my long term Lurpon use. I eat lots of calcium source foods as well as taking supplements to help ensure my bone density stays within the normal range. I have no plans to stop my Lupron treatments in the forseeable future - all of my doctors are aware of this. So, I can't offer any insight as to how long it will take your body to get back to "normal" or if it will. However, I was relieved to discover someone other than myself who has also used Lupron for such an extended period of time. Whatever the adverse effects may be down the road I will live with at that time. But I was unwilling and am still unwilling to live with the degree of pain I was experiencing daily. I was unable to function at a level which allowed me to live my life. Today, my life is "normal" and without pain. I wish you health and happiness in the future.

At Fri, 21 Jan 2005, Sarah wrote: >
>I posted a couple of weeks ago about long term use of Lupron. I have
>not heard anything from anyone and was wondering if I'm the only one out
>there who has used Lupron Long term.
>I was on Lupron for 5 years without stopping. This was my second round
>of Lupron in a 12 year battle with endo. 5 years ago I started Lupron
>for the second time and it is the only med that worked for me. The
>first time I was on Lupron (right after I was diagnosed 1993) the side
>effects were horrible. After going on and off numerous meds my dr.
>wanted to start it again in 1999. This time I took ad-back therpy too.
>I had no side effects and had NO PAIN for the entire time. I had found
>my wonder drug. I have only gone off it now due to insurance change and
>possibly wanting to start a family. I know Lupron is not for everyone,
>but for me it is the only thing that worked.
>I am curious if anyone knows how long it takes for your body to get back
>to "normal" after long term use. Maybe it never will.
>Any information anyone has would be wonderful. My doctor has never had
>a patient on Lupron so long so he can't really give me any answers. He
>has asked other doctors, but they don't keep patients on it long term.
>Thank you for any information--

--
Penny

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In reply to: Sarah: "Am I the Only One??"

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