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Re: Am I the Only One??
From: anonymous (anonymous@obgyn.net)
Fri Jan 21 14:07:11 2005
I've been on Lupron twice for 6 mos each time in the last 5 yrs. I
can't fathom being on it for as long as you have. I can never be on it
again though becuase it has caused major bone density issues and
problems with my teeth. I had my last course July-Dec of 2003 and I
still have not recovered. I still have hot flashed, memory problems,
and can't seem to lost the 10 lbs I gained during the last dose. I'm
sorry I don't have much to offer you since I've never heard of anyone
being on it for that long, but I certainly hope that you are taking lots
of calcium. Good Luck!
At Fri, 21 Jan 2005, Sarah wrote:
>
>I posted a couple of weeks ago about long term use of Lupron. I have
>not heard anything from anyone and was wondering if I'm the only one out
>there who has used Lupron Long term.
>I was on Lupron for 5 years without stopping. This was my second round
>of Lupron in a 12 year battle with endo. 5 years ago I started Lupron
>for the second time and it is the only med that worked for me. The
>first time I was on Lupron (right after I was diagnosed 1993) the side
>effects were horrible. After going on and off numerous meds my dr.
>wanted to start it again in 1999. This time I took ad-back therpy too.
>I had no side effects and had NO PAIN for the entire time. I had found
>my wonder drug. I have only gone off it now due to insurance change and
>possibly wanting to start a family. I know Lupron is not for everyone,
>but for me it is the only thing that worked.
>I am curious if anyone knows how long it takes for your body to get back
>to "normal" after long term use. Maybe it never will.
>Any information anyone has would be wonderful. My doctor has never had
>a patient on Lupron so long so he can't really give me any answers. He
>has asked other doctors, but they don't keep patients on it long term.
>Thank you for any information--
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