ENDO Messages for January, 2005: Re: Am I the Only One??

Re: Am I the Only One??

From: anonymous (anonymous@obgyn.net)
Fri Jan 21 14:01:19 2005

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i only took lupron for 5 months. i have been off for 2 months. i stiil as as i did when getting the shots. i am still tired all the time. i still have got flashes. i just got period back. my doctor told me it would take 3 months to get out of my system. i was told you are not suppossed to take oupron for me then 6 months. maybe 2 cycles. you have been taking lupron for 5 years? i have never heard of that. i was under the impression that is the worst things you can do. their are long term side effects. osteproisis is one og the, which i got from only a 5 months cycle. At Fri, 21 Jan 2005, Sarah wrote: >
>I posted a couple of weeks ago about long term use of Lupron. I have
>not heard anything from anyone and was wondering if I'm the only one out
>there who has used Lupron Long term.
>I was on Lupron for 5 years without stopping. This was my second round
>of Lupron in a 12 year battle with endo. 5 years ago I started Lupron
>for the second time and it is the only med that worked for me. The
>first time I was on Lupron (right after I was diagnosed 1993) the side
>effects were horrible. After going on and off numerous meds my dr.
>wanted to start it again in 1999. This time I took ad-back therpy too.
>I had no side effects and had NO PAIN for the entire time. I had found
>my wonder drug. I have only gone off it now due to insurance change and
>possibly wanting to start a family. I know Lupron is not for everyone,
>but for me it is the only thing that worked.
>I am curious if anyone knows how long it takes for your body to get back
>to "normal" after long term use. Maybe it never will.
>Any information anyone has would be wonderful. My doctor has never had
>a patient on Lupron so long so he can't really give me any answers. He
>has asked other doctors, but they don't keep patients on it long term.
>Thank you for any information--

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