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Re: burned out endo and bladder problems

From: Heather (anonymous@obgyn.net)
Tue Jan 18 23:05:49 2005


Thanks for your message. It's pretty unbelievable but today my doctor told me he thinks I have Interstitial Cystititis also! How are you doing on the Lupron? My doctor was going to put me on that but I was kind of freaked out by it. My doctor is going to do an operation to check for IC and he is also going to do a laparoscopy to remove my endo. I'm crossing my fingers that this will help! Anyway, thanks for your message and hope you feel better too. At Mon, 17 Jan 2005, Josie wrote: >
>Heather,
>
>I am right there with ya girl. I was just recently diagnosed with endo
>(I'm 25) and my doctor says she believes I had it since I first began
>menstruating. She discovered my endo through a laproscopy as well. I
>have it on my bladder, bowels, uterus and ovaries.
>
>I do get cramps a lot, but the worst is my bladder problems. I go at
>least 20 times a day and I feel urgency for long periods of time. My
>doctor also said she could not remove the endo.
>
>She also found cysts on my ovaries by doing an ultrasound.
>
>I am also being treated for interstitial cystitus (IC), a disease that
>often accompanies endo, in which the lining of your bladder is damaged.
>The symptoms of this are very similar to the bladder problems you
>described.
>
>I just started lupron and am taking elmiron for the IC. I also have the
>mirena IUD. Havent't had any good results yet, but I just started.
>
>Hope this information is helpful.
>
>--
>Josie
>
>At Sun, 16 Jan 2005, Heather wrote:
>>
>>I am 19 years old and I have been having painful periods since I was 13.
>>I had gone to all different doctors who did not help me. I finally
>>found a gyn who was willing to do a laporoscopy because she believed I
>>had endometriosis. When she went in she did find endometriosis on my
>>bladder and uterus. She said she was not able to remove it because she
>>was afraid of injuring me. She also referred to my endometriosis as
>>"burned out". I never understood what that meant and the laporoscopy
>>gave me no help. I was still in an incredible amount of pain and I was
>>put on birth control pills and prescription pain medicine. Now 3 years
>>after my first surgery, I am in more pain that I had been and my bladder
>>is also really bothering me. I constantly have all the symptoms of
>>urinary tract infections. I have pain pretty much everyday. I am now
>>going to a new doctor but I was wondering if anybody has "burned out"
>>endometriosis or can tell me more about it. I am also wondering if
>>anyone else has similar bladder problems. Thanks.
>>
>>--
>>Heather
>>



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