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Re: burned out endo and bladder problems

From: Josie (anonymous@obgyn.net)
Mon Jan 17 20:45:40 2005


Heather,

I am right there with ya girl. I was just recently diagnosed with endo (I'm 25) and my doctor says she believes I had it since I first began menstruating. She discovered my endo through a laproscopy as well. I have it on my bladder, bowels, uterus and ovaries.

I do get cramps a lot, but the worst is my bladder problems. I go at least 20 times a day and I feel urgency for long periods of time. My doctor also said she could not remove the endo.

She also found cysts on my ovaries by doing an ultrasound.

I am also being treated for interstitial cystitus (IC), a disease that often accompanies endo, in which the lining of your bladder is damaged. The symptoms of this are very similar to the bladder problems you described.

I just started lupron and am taking elmiron for the IC. I also have the mirena IUD. Havent't had any good results yet, but I just started.

Hope this information is helpful.

--
Josie

At Sun, 16 Jan 2005, Heather wrote: > >I am 19 years old and I have been having painful periods since I was 13. >I had gone to all different doctors who did not help me. I finally >found a gyn who was willing to do a laporoscopy because she believed I >had endometriosis. When she went in she did find endometriosis on my >bladder and uterus. She said she was not able to remove it because she >was afraid of injuring me. She also referred to my endometriosis as >"burned out". I never understood what that meant and the laporoscopy >gave me no help. I was still in an incredible amount of pain and I was >put on birth control pills and prescription pain medicine. Now 3 years >after my first surgery, I am in more pain that I had been and my bladder >is also really bothering me. I constantly have all the symptoms of >urinary tract infections. I have pain pretty much everyday. I am now >going to a new doctor but I was wondering if anybody has "burned out" >endometriosis or can tell me more about it. I am also wondering if >anyone else has similar bladder problems. Thanks. > >-- >Heather >




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