Re: burned out endo and bladder problems
From: Anna (anonymous@obgyn.net)
Mon Jan 17 19:16:19 2005
Dear Heather,
I have a similar situation in that I have lots of bladder symptoms but
have been cleared of all the usual bladder diseases by a urologist. I
have diagnosed endo though it's not known exactly where it's located
now.
My GYN offered to do laproscopic surgery using cautery to remove some
endo. She was upfront and told me that she would be unable to remove
endo on the bladder due to risk of damaging normal tissue. This is
typical of cauterization. It burns the tissue off and is hard to
control.
What you probably want is excision or laser surgery, which is far more
precise IF the surgeon is skilled.
I am in the process of trying to find a competant surgeon. Be
persistent and do lots of reading. Don't be shy to ask lots of
questions.
Check out the books put out by Mary Lou Baldweg (sp) at the endo
association.
They are very informative.
All the best,
--
Anna
At Sun, 16 Jan 2005, Stacy wrote:
>
>Dear Heather, your story is so like that of many women with endo. The
>most important thing to do right now is to find a doc who CAN AND WILL
>remove all your endo, no matter where it is located. Yes, there are
>doctors who are that skilled with lap surgery, but you have to try hard
>to find them, it seems. Not only did your first lap not treat the endo
>that was there, but most likely caused adhesions to form, making your
>problems that much worse. Endo on the bladder has symptoms identical to
>UTI, but without the bacteria when urine is cultured. You can find
>relief, but not unless you seek out the most highly skilled surgeon
>within reasonable driving distance.
>Try http://www.womenssurgerygroup.com for some good info. If you go to the
>endo section, and then to FAQs, there is a list of questions to ask your
>doc to find out if that doctor is skilled enough to do some good during
>a lap. Unfortunately, most doctors are not skilled enough to make much
>difference, and many actually make things worse instead of better. I
>just don't understand why they continue to practice!! It's just plain
>wrong!
>
>At Sun, 16 Jan 2005, Heather wrote:
>>
>>I am 19 years old and I have been having painful periods since I was 13.
>>I had gone to all different doctors who did not help me. I finally
>>found a gyn who was willing to do a laporoscopy because she believed I
>>had endometriosis. When she went in she did find endometriosis on my
>>bladder and uterus. She said she was not able to remove it because she
>>was afraid of injuring me. She also referred to my endometriosis as
>>"burned out". I never understood what that meant and the laporoscopy
>>gave me no help. I was still in an incredible amount of pain and I was
>>put on birth control pills and prescription pain medicine. Now 3 years
>>after my first surgery, I am in more pain that I had been and my bladder
>>is also really bothering me. I constantly have all the symptoms of
>>urinary tract infections. I have pain pretty much everyday. I am now
>>going to a new doctor but I was wondering if anybody has "burned out"
>>endometriosis or can tell me more about it. I am also wondering if
>>anyone else has similar bladder problems. Thanks.
>>
>>--
>>Heather
>>
>--
>Stacy F
>
>Visit my website!
>http://pages.ivillage.com/stafl/
>
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