ENDO Messages for January, 2005: Re: my endo is worse than your endo... puh leeze (TO ANONYMOUS)

Re: my endo is worse than your endo... puh leeze (TO ANONYMOUS)

From: anonymous (anonymous@obgyn.net)
Mon Jan 17 17:53:40 2005

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In reply to: Kristina: "Re: my endo is worse than your endo... puh leeze (TO ANONYMOUS)"

Thank you for agreeing with me, Kristina. I did go back and read all of the posts to the original thread and that is why I said what I did. People were starting to get completely off-track here and heading in the totally wrong direction. I challenged you and Melissa to cite some articles because it was turning into a 'I said, you said, no I didn't, yes you did' argument and it was wasting a lot of energy and brain power. In my challenge, I also included anyone else who had been involved in the discussion but since most of them were using the anonymous feature I could exactly name them by name. Nothing personal. I have posted a message of my own with a paragraph excerpted from a research paper done by a major university and included the link to the article. Has anybody read it? Anybody have any comments on it? Nope, you're all too busy playing on the monkey bars and poking each other with sticks. Knock it off already and get back to grown-up time.

Here are 4 points for thought and discussion - I'll be waiting to see if a real discussion can be had.

Point #1 Pain is subjective. How you perceive your own pain on any given day, even any given hour of any given day has nothing to do with the stage of your endo. Stages, whether for endometriosis, cancer, etc. are PATHOLOGICAL TERMS to assist the MEDICAL PROFESSIONALS AND SCIENTISTS in categorizing, identifying, researching and follow-up on diagnostic and treatment methods, in much the same way that you might color code recipe cards.

For discussion - what do you do to cope with the pain on your worst days?

Point #2 There are many websites that contain information about endometriosis. Some give the appearance of being factual but you must be careful about believing everything you read. Generally, if you can find 2 or 3 INDEPENDENT SOURCES that agree then the information is probably accurate. If you post information here that is incorrect you are not allowed to be offended or argue against the poster of the corrected information unless you are prepared to cite your sources and prove your original information was correct and factual. If you see information posted here that is inaccurate, correct it and cite your source or sources.

For discussion - what are some of your favorite sources of information?

Point #3 While this is a wonderful resource and a source of emotional support and basic common sense information nobody posting here is a bona-fide scientific expert on all things endometriosis related. We are all experts as far as our own personal experiences and that is where our expertise ends. This is a place to SHARE information and we should be very careful to be sure that the information we do share is correct, factual and fairly up-to-date. New people come here every day looking to the 'older posters' for information, you wouldn't want them getting invalid information would you?

For discussion - how do you explain endometriosis to your friends and family? Do they understand or do they still not quite get it?

Point #4 Imagine how much more meaningful, informative and educational this forum would be if there was information here that had some basis in fact instead of opinions and horror stories? How about some positive information being shared? How about some facts, figures, research reports? The support posts are terrific and certainly necessary but we need to add some real substance here to keep it interesting.

For discussion - how did 2004 measure up to 2003? Did you make any progress in the treatment and/or coping with endo? What sort of changes have you made in your life and how have they affected your symptoms?

And for anyone new who might be reading this - Put the question in your subject line in as few words as possible so that it shows up fully and give us as much detail as possible and you'll get better answers.

Listening with my eyes...

At Mon, 17 Jan 2005, Kristina wrote: >
>Anonymous,
>
>First off, Let must just say that YES, I agree, we all have way too much
>to deal with to deal with this stupid crap that has been going on.
>Second, If you'll go back and Carefully read from the very first
>post..You'll see I AGREED with you that there are only four stages of
>endo. Next, If you'll go back and see Melissa's response to me titled
>"To Kristina (To chime you in on some info)"...You'll see a comment she
>made to me about me making myself and my situation above
>others....NOWHERE, NOHOW, NEVER...did I do that....I am here to support,
>and be supported. I have said in every post that I wanted to agree to
>disagee and move on. Why My name was brought up again, and challenged,
>I have no clue. All of the things you said about pain not being an
>indicator of how progressed the disease is, or what stage you have, I
>AGREE WITH. Now, This is the last time I'm going to mess with all of
>this...I think it's gotten out of hand and I do have enough to deal with
>right now on top of this stupid disease. I hope that this can all be
>settled and we can move on to being a support group and this challenging
>stuff can be dropped once and for all. All I do ask is that I not be
>brought into things again if I don't need to be.
>
>--
>Kristina
>
>At Mon, 17 Jan 2005, anonymous wrote:
>>
>>Do we not have enough challenges in our lives without this kind of
>>nonsense?
>>
>>Give it a rest already. There are 4 stages of endometriosis. The
>>staging is done based upon the PATHOLOGY of the disease not the
>>patient's perception of pain.
>>
>>Stage 1 endo can hurt just as bad as stage 2, 3 or 4 and vice-versa all
>>the way around. Pain is subjective and has no bearing on the staging of
>>the disease.
>>
>>There are good internet sites where you can count on getting real,
>>factual, scientific and current information and two of them host this
>>forum. http://www.obgyn.net and http://www.endometriosiszone.org
>>
>>I challenge Melissa, Kristina, and anyone else involved in this stupid,
>>childish argument to go find an article from either website and share
>>what you learn here with the rest of the group.
>

Next message: Marla: "Re: Pain after Lupron while waiting for A/F to return?"
Previous message: holly: "Re: EMOTIONAL FEELINGS"
In reply to: Kristina: "Re: my endo is worse than your endo... puh leeze (TO ANONYMOUS)"

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