Re: THIS FORUM IS FOR SUPPORT
From: anonymous (anonymous@obgyn.net)
Mon Jan 17 14:38:30 2005
Jillian,
I totally agree with you. My message, There are only 4 stages of endo,
was not meant to be rude or hurtful. I just wanted the correct
information to be there. However, some drew the conclusion that I was
attacking them and wrote back some pretty mean comments. I think that
people should be given the benefit of the doubt, and we should assume
that their motives are good ones, that way we wouldn't get offended and
go on the attack. I wrote only one message, but was blamed for saying
things that I didn't even say, and postings that I didn't make. If you
re-read the original post, it is not mean nor is it rude. It is just
factual. I think that some women on here are more abrubt in their
wording, but that is the thing about people, there is no one size fits
all. Some, like yourself, are blessed with the ability to express their
thoughts without offending anyone, while some, like me, seem to offend
no matter how hard they try not to. I just wish that people would
realize that and not take everything so personally.
God Bless
At Mon, 17 Jan 2005, Jillian wrote:
>
>Anonymous,
>
>No one is saying that if someone has incorrect information that you
>shouldn't offer them the correct information. The problem I have is the
>way some of our fellow posters have been talking to one another. You
>can offer someone correct information in a more respectful way than what
>I've seen here in the past day or two. It's all in the delivery. I
>remember how overwhelmed I was when I was first diagnosed and all of the
>things I was being told (some of which was wrong). I know I was not as
>informed as I am now, but I couldn't have been. I didn't have the
>resources, but I found them. We need to keep in mind that there are
>some people reading and posting here who are beginning this journey and
>anything we say to each other needs to be in the spirit of helping. If
>we don't, then this forum will lose it's value. Those of us who suffer
>with this disease have enough obstacles. I don't want to start counting
>fellow sufferers among them.
>
>--
>Jillian
>
>At Mon, 17 Jan 2005, anonymous wrote:
>>
>>But why should we just ignore false information? If I posted something
>>that was wrong, I would hope someone who knows more about this disease
>>would post the correct information. Part of the reason that there is no
>>cure for this disease is because of all the false information
>>surrounding it. My doctor told me that getting pregnant would cure my
>>endo, but I was way too young and didn't even have a boyfriend. Had I
>>listened to him, I would still be in pain with a child to take care of!!
>>Instead, I did my research at places that do nothing but research endo,
>>and found out that that is another myth!! Ever since then I have vowed
>>to never let another women believe false information about this disease,
>>as long as I could. If Melissa has proof that her information is true,
>>then I think we should all see it. I think that informing people of the
>>truth is the best way to support eachother. Ignoring false information
>>is not supportive, it is foolish.
>>
>>At Mon, 17 Jan 2005, NIKKIE wrote:
>>>
>>>I THINK EVERYONE HAS LOST SIGHT AT WHAT THIS FORUM IS FOR. WE ARE HERE
>>>TO SUPPORT EACH OTHER. MAYBE A PERSON IN THE MEDICAL FIELD TOLD THEM
>>>THERE IS STAGE 5. WHY WOULD THEY NOT BELEIVE THAT PERSON. I HAVE SEEN
>>>DOCTORS WHO HAVE TOLD ME ONE THING AND ANOTHER DOCTOR TELL ME NOT TRUE.
>>>THERE IS NO REASON FOR EVERYONE TO GET DEFENSIVE HERE ON BOTH SIDES.I
>>>COME HERE FOR SUPPORT AND SOME RELIEF. I DO NOT SEE THAT GOING ON. IF
>>>YOU QUESTION WHAT SOME ONE SAYS IF IT IS TRUE THERE IS NO NEED TO JUMP
>>>ON THAT PERSON OR VICE VERSA. EVERY MONTH OR SO THERE IS A
>>>DISAGRREEMENT ON THIS SITE AND IT GETS NASTY. I HAVE TO TELL YOU IT
>>>MAKES ME NOT WANT TO POST ANYTHING ON THIS SITE FOR FEAR OF WHAT SOMEONE
>>>MIGHT COME BACK AT ME WITH. WELL I FELT LIKE VENTING OVER THIS AND I
>>>JUST HOPE EVRYONE CAN GET OVER THIS. REMEMBER WE ARE GOING THROUGH THE
>>>SAME THING. WE ALL HAVE ENDO. IT DOES NOT MATTER HOW MUCH WHAT STAGE
>>>OR HOW BAD. YOU JUST HAVE ENDO. WE ALL HAVE HAD TO DEAL WITH THE
>>>HORROR OF THIS. LETS NOT MAKE IT WORSE. THIS FORUM IS TO SUPPORT EACH
>>>OTHER.
>>>NIKKIE
>>>
>>>--
>>>NIKKIE
>>>
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