ENDO Messages for January, 2005: Re: burned out endo and bladder problems

Re: burned out endo and bladder problems

From: Stacy (anonymous@obgyn.net)
Sun Jan 16 17:30:15 2005

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Reply: Anna: "Re: burned out endo and bladder problems"

Dear Heather, your story is so like that of many women with endo. The most important thing to do right now is to find a doc who CAN AND WILL remove all your endo, no matter where it is located. Yes, there are doctors who are that skilled with lap surgery, but you have to try hard to find them, it seems. Not only did your first lap not treat the endo that was there, but most likely caused adhesions to form, making your problems that much worse. Endo on the bladder has symptoms identical to UTI, but without the bacteria when urine is cultured. You can find relief, but not unless you seek out the most highly skilled surgeon within reasonable driving distance. Try http://www.womenssurgerygroup.com for some good info. If you go to the endo section, and then to FAQs, there is a list of questions to ask your doc to find out if that doctor is skilled enough to do some good during a lap. Unfortunately, most doctors are not skilled enough to make much difference, and many actually make things worse instead of better. I just don't understand why they continue to practice!! It's just plain wrong!

At Sun, 16 Jan 2005, Heather wrote: >
>I am 19 years old and I have been having painful periods since I was 13.
>I had gone to all different doctors who did not help me. I finally
>found a gyn who was willing to do a laporoscopy because she believed I
>had endometriosis. When she went in she did find endometriosis on my
>bladder and uterus. She said she was not able to remove it because she
>was afraid of injuring me. She also referred to my endometriosis as
>"burned out". I never understood what that meant and the laporoscopy
>gave me no help. I was still in an incredible amount of pain and I was
>put on birth control pills and prescription pain medicine. Now 3 years
>after my first surgery, I am in more pain that I had been and my bladder
>is also really bothering me. I constantly have all the symptoms of
>urinary tract infections. I have pain pretty much everyday. I am now
>going to a new doctor but I was wondering if anybody has "burned out"
>endometriosis or can tell me more about it. I am also wondering if
>anyone else has similar bladder problems. Thanks.
>
>--
>Heather
>

-- Stacy F

Visit my website! http://pages.ivillage.com/stafl/

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