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Re: I have Text Book Stage 4 but looks like stage 5 endo, organs fused together...From: amy (anonymous@obgyn.net)Sat Jan 15 13:06:53 2005
At Tue, 7 Dec 2004, Julie wrote: > >At Sun, 5 Dec 2004, amy wrote: >> >>i had surgery a week ago. we where sure i was stage 3 but turned out >>that my utrus and colon were fused together. the surgon had to cut 5 >>layers of endo. it took 3 hours. the doc said that the lazor would >>have never been able to proform 100%. my doc used micro sizzers. he >>was able to get 87%. he will remove the rest with hormones. i feel a >>lot better. i am eating like a pig and feel good. i am only into week >>two of recovery. >> >>i am on a quest to get to the root of my endo. my doc said i had it for >>15 years and should have seen him 5 years ago. not one gyno could tell >>me my problem. they all said that the pain was eather not normal or >>that i will get used to it. i am looking for a really good lawyer. i >>feel like my 15+ year's have been stollen from me, medical bills, lost >>days at work even costing me my job. >> >>i am self employed for the past 3 years. i had to pay out of pocket for >>everything, total was $28,000.00 + doc visits. i am looking foward to a >>struggle free work life and a happier out look on alot of things to >>come. good luck to all. > >Hi Amy, > >I am sorry to hear about the endo. My endo. had fused all my organs >together plus I had a football size tumor. Three doctors were guessing >what was endo. and what was an organ. They did a total hysterectomy >and took all other organs that I could live without. They used their >hands to pull the endo. off and the first surgery took six hours. One >year later it was back with a softball size tumor and this time they >removed 8 inches of my large intestine and I have a colostomy bag. I >have stage four and my endo. specialist Dr. Bieber from Giesinger in >Danville Pa. said there was only four stages. Did your doctor tell you >you have stage five? > Julz Hi Julz, I am sorry to hear about your endo. I can't beleive it! I hope I could be of some help. You and I have the text book satge 4 but in truth we are a 5 and beyond. We have D.I.E. and need to stay with a GYN that is a true surgon and use to treating the extrem. From what my doc has told me about my case another doctor would have done the same thing that your 3 doctors had done to you. I feel confident in my surgon and he was very detailed and creative and is trained bythe Mayo Clinic is very Cutting edge in this feild. Please e-mail me if you need to contact my surgon/doctor. I would classify him as a surgon first doctor 2nd. Amy
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