Re: Lupron almost killed me... or was it something else?
From: anonymous (anonymous@obgyn.net)
Wed Jan 12 17:14:08 2005
Most likely you had an allergic reaction to either the substance used to
deliver the lupron or to the synthetic properties used to manufacture
the drug. It would be important for you to find out what food and drug
allergies you do have. A tip for you in the future, whenever you are
given a new prescription for something you've never used ask the
pharmacist to give you only a 2 or 3 day supply. That way, if you do
have any sort of reaction to it you didn't dump a bunch of
non-refundable money on it. If not, you can always go back and get the
rest.
It is also possible that the hepatitis was contracted from the needle or
syringe or that the dose you were given was contaminated and if so,
other patients of that doctor may also have been exposed. Again,
something that should be looked into.
Patients absolutely must take responsibility for their care. With
access to drug information and databases it is inexcusable to use the
"nobody told me about the side-effects" excuse. The pharamacist should
be providing you with a patient monograph for EVERY prescription filled
and your doctor should certainly be providing you with one for drugs
administered in the office. It's all part of informed consent. If you
don't get a monograph then ask for one and do not take the medication
until you have read and understood it. If you have questions then ask.
If you go to http://www.rxlist.com and type Lupron in the search field
you will see the entire list of what the drug is, the chemical compound,
the indications and contraindications, side-effects (including weight
gain!) and so forth. They have the same information available on most
over-the-counter products as well.
Come on ladies, you're all intelligent enough to find your way to this
forum, so use the internet and educate yourselves. There are a ton of
very good articles on the EndometriosisZone website
http://www.endometriosiszone.org and the OBGYN.net website
http://www.obgyn.net which provide this forum for your use. Both
websites have excellent and improved search features to help you find
the information you want. Then come back here and share what you've
learned.
Happy self-educating!
At Wed, 12 Jan 2005, Carrissa wrote:
>
>Thank you, whoever you are for reading my story. Please feel free to
>comment or e-mail me.
>
>For me, it was always hard getting a doctor to understand me. They
>never what to listen to what i have to say, they just want to tell me im
>wrong befoer they have a chance to find out. I may not have gone to
>medical school and read alot of fancy books that taught me big words so
>i sound smart, but i do know when there is somthing wrong with me. It
>took months of trying to convince my gyno that there was somthing wrong
>with me besides my enlarged ovarian cysts. When he finally agreed to
>look around he discovered i had endometriosis. Well, i told him so!!
>The surgery was in June and in August i went back to talk about what to
>keep it from comming back. That was the first time i had heard the term
>Lupron. All i was informed it would do was put me through a temp.
>menapause. Unfortunatly i didn't know what that ment. I was only
>informed about the hot flashes(which suck)lack of my period for 3 months
>each shot, and mood swings... however i was unaware of the bad
>sideffects like gaining 40lb's practically over night, even though my
>appitite hadn't really changed, puffy ankles toes, and fingers, and the
>worst sideffect was a chemical form of hepatitis. October of 2004 days
>before my moms wedding i was turning yellow and hadn't eaten in three
>weeks. The sight of food made me want to vomit. I hade horrible
>shooting pains under my rib cage and was constantly tired. I was in the
>hospital for 8 days before i could get some factual answers. From there
>i was put on steriods and sent home, not allowed to drive or work for
>three weeks. When i tried to talk to the doctor who gave me the shot
>and everyone inbetween, i was told i was "wrong, lupron can't cause
>hepatitis" shows how much they know. Every doctor i saw in the hospital
>and my regular doctor knew the only way i could have hepatitis was the
>shot, and yet and one i have talked to in my new obgyn office and old,
>have told me it was impossible. They also say that i shouln't be
>experiencing the menapuase symptoms, but i am, 6 months after the shot.
>Who knows when this will ever end?!?!?
>Well i see a specialist on the 20th of january because i am still in
>some consideration of pain, im not yellow (thank God) but still in pain.
>I want to know if anyone else is having problems with this medication, i
>know im not the only one, i can't be the only one. If anyone else has
>had problems, please e-mail me. I plan on taking action as soon as i
>get my results from the spealist, and i invite anyone who has had a
>similair case to join me. These people must be stopped, and i want to
>make sure that all other women don't have to go through the aggony i had
>to. Looking back at my moms wedding pictures, she thanks heaven i was
>able to be in the wedding, and i cry because no matter how beautiful
>everyone said i was, or how much makeup i had on, nothing would cover
>the yellow face perminatly indented in my mothers wedding album.
>
> -Carrissa Blueneon4me@yahoo.com
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