ENDO Messages for January, 2005: Re: Bad side effects from Lupron injection

Re: Bad side effects from Lupron injection

From: NIKKIE (anonymous@obgyn.net)
Wed Jan 12 06:02:29 2005

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In reply to: Suzanne: "Re: Bad side effects from Lupron injection"

i thought i was the only one getting lost going someplace i laways have gone. but i have learned that lupron has made mre forget. sometimes i will be driving and forget where i was going. i loose everything.i also have such a hard time concetrating. i used to reada book a week. ya right not any more. i can't concetrate long enough to read it. i have been on effixor for 2 yeard. i got my last lupron shot in nov. i did not get the sixth one because of how bad the side effects where. it made my teeth even brake. not only has it taken away a piece of my brain. but it took any sex drive i had away. i posted they other day. lupron broke me.there is no other way to put it. i understand what you are going through. my heart goes out to you. but i do know women that have taken lupron no side effects and it worked wonders on them. so i am glad that it has helped someone. nikkie At Wed, 12 Jan 2005, Suzanne wrote: >
>Jan 11, 2005
>
>I'm 32 and I had a hystorectomy at 28 due to endometriosis. I have one
>ovary left, and normal levels of estrogen which has since continued to
>often cause me pelvic cramps and sharp pains. My gyno prescribed Lurpon
>for this and I was given 3 shots with my 3rd at the end of April 2004.
>I've not worked since. (This was my 2nd set of 3 monthly shots - first
>set 1 1/2 years ago with no noticeable side effects and the endo pain
>retreated for almost 1 1/2 years). I used to work in a very busy,
>multitasking office as office manager.
>
>The first shot in this set didn't seem to affect me much, the second did
>affect my concentration (or lack of it) and I was a little different of
>a person but I didn't really attribute it to the Lupron, just thought it
>was me going thru an age phase. Then within 2 or 3 hours of receiving
>my 3rd shot on Apr 28, I knew something was very wrong. I started doing
>very out of character things, got lost going to work (of 10 years being
>at the current address) 2 days later after having a total character
>crash and my brain basically started to feel like I became totally
>engulfed in a thick fog. This "fog" is very much still here. It's less
>now but it's been almost 9 months.
>
>Since April,I've been seen by 2 regular doctors, a neurologist, and a
>psychiatrist who prescribed me Effexor starting about 6 months ago. My
>brain does seem to be working faster now and I cannot agree with you
>both more on the difficulty concentrating, nervous, jittery, anxious,
>emotional extremes, very tense muscles and I am definately NOT as smart
>(fast). I'm much slower than I used to be even still. I also have
>memory lapses (forgetting the past 15 minutes of the movie I'm watching
>completely), a problem especially with short term memory (eg. what did
>I go upstairs for?). I get mixed up easily, have very vivid dreams but
>I have problems getting and staying asleep. I have problems following
>longer stories, either being told to me, watching, hearing or reading
>them and have a really tough time concentrating. My physical balance is
>off and I get vertigo feelings when moving around quickly like being a
>passenger in a car but this goes away if I shut my eyes. I have almost
>no tolerance for extreme stress (I shut down) and my life is now just
>much simpler. It has to be. My bones ache now and I have a lot less
>energy in a day than before lupron. Sleep is mostly what I do,
>unfortunately, but I sometimes just don't have the energy. Part of this
>is probably cause I also am in constant battle with my appetite and a
>total lack of it. Again, some these symptoms are lessening over time
>and the effexor definitely keeps me more emotionally stable but only
>time seems to have helped any of my other side effects. Like most
>antidepressants, it's important that I take the correct number of pills
>a day (yuck) and that I don't miss any or I'm a mess.
>
>Luckily, (like I need more problems) I didn't and don't have any
>menopause symptoms like hot flashes from lupron likely because the
>gynocologist who prescribed the lupron also prescribed a small dose of
>estrogen for the 3-4 months the Lupron was to be in my system. Either
>Lupron's still in my system or it's changed some chemical balance (my
>perception of this) that's affected my brain over a long term. I guess
>I don't have to say that I don't recommend Lupron to anyone, ever. If
>you've used it and it worked for you without the side effects that
>didn't make it worth it at all to me, that's great, less pain is good.
>
>I've searched the web and read a bunch of info on endometriosis and
>Lupron and it's side effects including a couple other forums where
>Lupron victims have spoken about so many of the symptoms we've listed
>but I have not found anywhere that has explained what exactly Lupron
>does to our bodies especially our nervous system and brain chemicals -
>not what the company who makes it (TAP Pharmaceuticals I think) says it
>does or should do but what it REALLY does. Then maybe we can figure out
>how to counteract it's serious side effects. Maybe if anyone could post
>some of the clinical trials they find on the web for Lupron, that would
>be helpful. Also, I've found very few women who've posted what they
>found helped minimize their side effects (other than you two who've
>talked about anti-depressants). Is this because no one has found
>anything that works other than wait it out? How long should we wait?I've
>asked my psychiatrist these very questions and will see what he's found
>in his "literature research". He doesn't seem to have much experience
>with Lupron or victims of it but I'm hoping with his knowledge of the
>brain and it's specific chemicals and their interactions, he'll be able
>to decipher some of the technical info and have the info more available
>to him than regular patients like me.
>
>I will post here again if I find out anything more, regardless of
>whether the original posters revisit here, just in case someone else
>with lupron questions or experience happens across this page. I praise
>all those who support victims of lupron through their challenge and I
>wish all those who suffer a better day tomorrow. Feel free to post here
>if you have any questions or comments for me cause I will check back
>here even if I don't learn anything further.
>
>- Suzanne
>BC, Canada
>
>At Thu, 8 Apr 2004, anonymous@obgyn.net wrote:
>>
>>At Thu, 8 Apr 2004, SH wrote:
>>>
>>> Hi Mary,
>>>
>>>The last time I was on Lupron (my 2nd time and trust me, it will be the
>>>last time EVER), my dr. gave me a prescription for Effexor. I took one
>>>about every other day and it diminished the side effects. It's an
>>>anti-depressant but it's being prescribed a lot for hot flashes
>>>according to my dr. Hope this helps.
>>>Stacy
>>>
>>>At Wed, 7 Apr 2004, Mary wrote:
>>>>
>>>>Hi My name is Mary and I had my first lupron injection almost 3 months
>>>>ago, and am due on Apr 20th to get my 2nd shot. Problem is, I really
>>>>don't think I want to go for #2. I am having difficulty concentrating,
>>>>I'm nervous, anxious, jittery and having hot flashes out the wazoo.
>>>>Having alot of trouble sleeping and find myself lost in emotional
>>>>distress alot more often, more so than when I suffered with horrible
>>>>periods. Anyone out there who went through the "Lupron" hell, er, I
>>>>mean treatment, do you have any suggestions on what to do? I really want
>>>>to have a baby ASAP, and I feel this may be my only hope.
>>>>
>>>>--
>>>>Mary
>>>>I am currently going through the Lupron hell myself. it makes me very anxious and emotional----mostly depressed and insecure with myself. I have been on four one month shots now, and also like you, want a baby but can't have them. I don't want to be on Lupron any more but don't know what else to do. I am now on an antidepressant to counter the emotional side effects of the drug. It is called Remeron. It has been two weeks and now I am finally starting to feel better about myself. I was on effexor last summer after a surgery that caused me to loose an ovary and my remaining fallopian tube (now have no tubes therefore can't get pregnant). The effexor helped me but gave me problems with my vision--blurry vision, and stomach problems. So I guess the Remeron will be better for me, but it takes longer to work than the effexor. If effexor works for you, keep taking it. It takes only a week or so to feel better on effexor. When you have a lack of estrogen you can easily get depressed because it interferes with the serotonin production in your brain. Serotonin is the feel good chemicle in your brain that makes us all function normally, and feel good. so if you are on Lupron, you may feel anxious and depressed after a few months when Lupron starts taking full effect on your body because you are producing less serotonin.
>>I think taking an antidepressant is an ok thing for anybody on Lupron,
>>especially people prone to depression and anxiety like myself. i do get
>>a fuzzy feeling in my head also with this Lupron, do you??? I feel very
>>out of it, and like I am not pulled together, not as smart. Anybody
>>else feel that way????

--
NIKKIE

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In reply to: Suzanne: "Re: Bad side effects from Lupron injection"

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