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Re: I just need some answers and support
From: Lisa (anonymous@obgyn.net)
Thu Dec 30 00:57:32 2004
Wow- I'm 22 too! I was really afraid of being infertile too. I was just
diagnosed at the end of October with a Stage IV after sooo many years of
pain. Here's what my doctor told me: you are either going to be
pregnant, actively trying to get pregnant, or on endometriosis
medication from now until menopause. No other way. Ok, fine- but the
lemonade out of lemons was that he didn't feel that I should necessarily
have problems getting pregnant. I was a little Vicodin-ee at the time
but my mom said that she got the impression that even getting pregnant
the natural way one day was possible. It's hard to think that
positively now I know, I'm up and down all the time. I had an emergency
lap at the end of Oct when they removed a endometrioma the size of one
of those novelty footballs they hand out at football games. Now it's 2
months later and I already have another one larger than an egg. But
now, I have this really wonderful specialist that actually wrote the
chapter on endometriosis in an annual obgyn textbook. Right now until
he gets back from vacation, I'm on constant Darvocet (Motrin, Janet??
Yeah right! Definitely get a new doctor!! I feel your pain and
unfortunately narcotics are the only thing that help me) and I'll be
starting Lupron soon to see if that can shrink the endometrioma by the
time he gets back in the middle of Jan so I won't have to have surgery
again. Anyway, apparently real small chance of that-- I'm glad that
there are forums like this and I'm always up for talking! Good luck and
good health to everyone : )
At Wed, 29 Dec 2004, Janet wrote:
>
>Hi,
>This is my first post here--I came here looking for answers as well. I
>have had endo the majority of my life. I can remember at 10-11 yrs. of
>age waking up in the middle of the night in terrible pain, being rushed
>to the ER and they were never able to find the problem. I spent many
>years going to different doctors and being told there was nothing wrong
>with me, it was all in my head! I was 29 before I was officially
>diagnosed with endo. I had already had 3 children at that time and had
>lost 4 babies. After being diagnosed with endo, having a laproscopic
>surgery, it was 6 months time and I had to have another surgery to
>remove my right tube and ovary. They were ate up with scar tissue so
>badly that the ovary was nothing but scar tissue and it was attached to
>my abdominal wall with scar tissue. To say the least, I was in horrible
>pain! Since then, I have had 2 more children--for a total of 5!! My
>childrens ages: 17 boy, 14 girl, 10 boy, 2 yr. boy, 8 month old girl!!
>So, you see, it is very possible to have children with endometriosis. I
>have had 12 pregnancies and only 5 of them were complete. It was a hard
>road and I did loose many babies, but I am very thankful for my 5
>wonderful children. The key to keeping my pregnancies ended up that I
>had to take progesterone suppositories (vaginal) for the first 14 weeks
>of my pregnancy, this helped me with keeping the pregnancy for full
>term.
>Do not give up on the thought of having children, it is very possible to
>have children--and lots of them.
>I am now on a search for the right doctor to treat my endometriosis. I
>just went to a new doctor yesterday and will not be going to see him
>again as his suggestion was to rip everything out and the endo would go
>away. We all know that is NOT how it works. He also refused to give me
>anything for pain and said to take motrin. You know, I wish that a man
>could experience for a day some of the pain that we feel with this
>disease! They wouldn't be so quick to tell us to toughen up and just
>take motrin!
>I wish you all the best and make sure that you research endometriosis
>very well. Do not let a doctor tell you that it will go away if they
>take out your uterus and tubes, because that is not correct! Kind of
>stupid if you ask me, how can they really expect it to go away if it is
>in other parts of your body?
>I'm still searching for answers, and I've been searching for a long
>time. I wish everyone the best with their search as well!
>**Hugs to all**
>Janet
>At Wed, 22 Dec 2004, Tara wrote:
>>
>>I went in for laproscopy two weeks ago and went for my follow up today.
>>My doctor told me the biopsies came back positive for endometryosis. I
>>asked him if this would affect my having children and he said it does
>>increase the infertility chances, but there is no way to know really
>>until I start to try and have children.
>>
>>To be honest, I'm really scared. I know that every woman has a chance
>>of not being able to have children, but I have just turned 22 and the
>>thought of never being able to experience that is frightening.
>>
>>If you have any encouraging stories or any advice to share, I welcome
>>it.
>>
>>Thank you
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