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Re: curring Endometriosis
From: Kim (anonymous@obgyn.net)
Thu Dec 23 17:09:35 2004
I was just reading and hope you are not offended... the precise number
they have given for hyst. to alleviate pain associated with endo (not
cure since the cause itself isn't known for sure) is 80% (and 20% that
one or all of the symptoms will not be relieved.) I just wanted to let
people reading know that while it is not a sure-fire way to help with
endo it is an option... one that shouldn't be taken lightly, but an
option for people who have tried conservative medical therapy. I am one
who chose it.. just for the fact that after trying all other
medication, herbals, diets, pain management...doctors were not offering
any other solutions. I mean.. you cannot say that it will not help
some of the people suffering from this disease. I know some people who
say lupron has helped and others who say the opposite,but that means
nothing to those who have yet to try it. I think people should
recognize this as one of the many treatments that are offered (with no
promise of relief.... I know all who have this procedure sign a consent
form recognizing that is not assured to cure or relieve their
pain/symptoms...Thanks for your time and I hope you do find some
relief...
At Thu, 23 Dec 2004, Lisa wrote:
>
>I keep reading about how full hysterectomy with full removal of the
>ovaries is a cure-all for this disease and I know from personal
>experience it is not.
>
>I had a hysterectomy in June 1984 (I was only 21 years old) due to
>endometriosis (performed by Dr. Charles Thomas, Indianapolis, he is now
>retired but was in a group called Indianapolis Gynecologists), during
>this surgery they left ½ of one ovary (thought they removed both at the
>time but that is another story in itself), 4 years later (1988) had to
>have surgery again for recurrence of endometriosis (same doctor) and
>thought ‘okay, that’s it…no more ovary for sure, so no more
>endometriosis again’.
>
>Not so…9 years later in 1997 I had a recurrence of endometriosis
>verified through two laparoscopic surgeries and video was shown to me (I
>actually have the video around here somewhere). The
>gynecologist/fertility specialist was so baffled since I had no ovaries
>that he ran tests to search for the presence of ovarian tissue and all
>of them came back negative for any ovarian tissue. The recurrance had
>almost taken over my left side abdominal wall and colon.
>
>I was told at that time that under the conditions they found it appeared
>that endometriosis could spread without the aid of ovarian tissue and
>that this may be an ongoing problem throughout my life ...to the extent
>of possible 'moving throughout' any of my abdominal organs'.
>
>Here is the doctor who performed the last surgery (he is also a
>fertility specialist):
>
>JAMES DONAHUE, MD
>8051 S EMERSON AVE # 460
>Indianapolis, IN 46237
>Phone: (317) 865-0411
>
>I feel that had I been conservative (no hysterectomy) I would have had
>the same problems anyway. I feel that as a woman I am forced to let
>others know of this experience and know that hysterectomy is not a cure
>for this life long disease. I have noticed in recent years that several
>websites have
>eliminated their old statements of 'However, only surgical removal of
>both ovaries prevents endometriosis from recurring', but many are still
>saying this and it is just not true.
>
>--
>http://www.lovemyskincare.com
>
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