|
Re: 'paps, colposcopies, biopsies, ultrasound, blood work, all normal...but i'm not 'normal'
From: Marcie (anonymous@obgyn.net)
Tue Nov 30 18:59:14 2004
Dear Melody: I can feel your pain and it does sound like all the
symptoms of ENDO. You are not alone. I suggest that you see an ENDO
Specialist who specifically treats this unbearable disease. IF you like
more info re: ENDO pls check this website: http://www.geocities.com/endovictims
and scroll down and click on "Finding a Doctor who really can Treat
Endo" http://www.hcgresources.com(This helps with any questions you might have
for the Doctor). Also invest in the Booklet "The Endometriosis
Sourcebook" by Mary Lou Ballweg and The Endometriosis Association I
found it very helpful.
I too am experiencing this dreadful disease since 1999, had surgery, and
it came back with a vengeance and close to having surgery. When I had
the Surgery in 1999, I did not know I had ENDO (thought it was
appendicities) and the Dr. who performed the surgery was not an ENDO
specialist. I learned my lesson that it is impt to seek an ENDO
specialist who can try and get it all out. All the symptoms you
described are some that I have been experiencing myself, especially
going through with all those tests you described and yes, the
Endometrial Biopsy is quite painful and I stopped having Ultrasounds and
going through the torture of drinking all that water. There are MRI's
which isn't painful. If I can be of further assistance, I review the
forums almost on a daily basis. Take Care and I wish you the best of
Luck!
Marcie
At Mon, 29 Nov 2004, Angie wrote:
>
>Hi Melody,
>
>It sure does sound like Endo, and the only way to diagnose and have it
>removed is by having the lap done. It doesn't sound like your doctor is
>"johnny on the spot" for treating you, are you happy with her? Do you
>have any idea of when you are supposed to have the lap? I had my first
>one done by my OBGYN and he said I didn't have endo. My pain continued
>so I did an internet search for "endometriosis specialist" and added my
>city and state. I found a website for an infertility clinic and went
>and saw the doctor there. He ended up doing a 2nd lap 4 months after
>the first one and I did have endo. I would definitely recommend having
>one done by someone who very frequently deals with endo, if not
>specializes in it. My insurance doesn't cover infertility services but
>since he was treating endo and not infertility, most of it was covered.
>
>I wish you the best of luck and hope you get your lap soon!! I would
>also recommend a pain management clinic. Even though it has been almost
>2 months since my lap, I am still in almost the same amount of pain. I
>am told that it can take several months to see the results of the lap so
>I am taking long term pain medication until then.
>
>Feel free to email me if you have any questions!
>
>Take care,
>Angie
>
>At Sun, 28 Nov 2004, melody wrote:
>>
>>Hi everyone,
>>I've been reading for quite awhile, but this is my first post. During
>>the past year I've started having many of the same symptoms that I've
>>read on here. Jan. 04 started noticing achy and crampy feeling after
>>intercourse (been married almost 20 years). For next couple of months
>>had bad discharge...was told it was bacterial infection. May 1 had
>>horrible pain in lower right side..dr. said probably cyst ruptured..but
>>no big deal. Then in June started bleeding (spotting) seven or more
>>days before period started. July to August started having pain "during"
>>intercourse. Each month it keeps getting worse. Had colpo and
>>endometrial biopsy in August due to bad pap. The exam hurt so bad. Had
>>ultrasound early Nov. Having a full bladder was just about the most
>>painful thing I've experienced in long time. Pain in back was horrible.
>>Had another pap on Nov 9..having the speculum (or whatever it's called)
>>inserted was so painful. Cervix bled as soon as touched. Dr. did
>>another colpo on Nov 18 to biopsy the spot that wanted to bleed..was
>>still bleeding. Anyway, the exam on the 18 was the worse yet. I was
>>nearly in tears during the whole time. Shouldn't that much pain be a
>>"clue" to a dr that something is wrong? Anyway, she is suppose to refer
>>to one of her partners to do a lap. Sorry to be so long...just wanted
>>to get some ideas. I have terrible back pain a few days before my
>>period. The past couple of months I've had it at other times too. Also,
>>during the time that I'm spotting before my period, when I strain with a
>>bm I have vaginal bleeding worse. I can deal with irregular bleeding,
>>and back pain, but I can't deal with pain of intercourse...I've got to
>>find out what is causing this. Thanks for reading.
>>
>>--
>>Melody
>>
|
|
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)