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Re: Lupron Side Effects
From: anonymous@obgyn.net
Mon Nov 29 21:37:19 2004
hi, i also had side effects and told my doctor something was wrong and
he told me he never heard of these side effects and neither did his
collegues BUT he did confide in me that i was the first patient he ever
gave this medicine too...i felt like i giunee pig, a very sick one at
that. i was 23 and my body began to go thru menopause which was a shoke
to my body itself then i started to get sick the day after the
injection, i would be at work and then just turn green and started to
vomit, i'd get sent home from the job that i had just started and not
remember anything until two days later like i blacked out. thank god my
boss was there to witness it although i still got fired by a higher
manager. For months after the injections stopped i still got sick and i
still do a year later...its like someone gave me a tetnus shot in the
uterus, the most painful thing ever because the endomitriosis is still
there, those shots did nothing.
carol
At Mon, 23 Aug 2004, Dawn wrote:
>
>Hi Kim,
>I've had some of the same side effects you had. When I told my Ob/Gyn
>about them at first he didn't seem to think it was caused by the Lupron.
>After they didn't go away when the Lupron *should* have been out of my
>system, he referred me to a good internist or rhematologist to see if I
>had an autoimmune disease like rheumatoid arthritis, lupus,
>fibromyalgia, or something similar. His theory was that a lot of women
>get these types of diseases after going through menopause, and that
>maybe the Lupron (putting me into the menopausal state) just sped up the
>process for me, that I was headed for something like this and I got it
>sooner than I would have (I'm 36 now). That made sense, although,
>saying the Lupron didn't cause it is pretty much a stupid semantics
>argument.
>I'm now seeing an internist and have gone through a bunch of blood tests
>to see if anything shows up. So far, the only thing that did show was
>an elevated "C Reactive Protein" and I have to get retested for it again
>in a few weeks to see if it is still elevated...
>I've kind of become stubborn when it comes to doctors. When I know that
>something is really physically wrong with me, I don't take the "well, we
>just don't know anything about Lupron..." or "it's all in your head..."
>routine from these doctors any more. My advice is to keep looking for
>someone who really listens and believes you. I don't know how many of
>them have told me those things. I wanted to scream to them, "OK, so...
>You're the doctor here aren't you, couldn't you go research it?" I did
>have two specialists who went to the trouble to go look up Lupron in
>their offices and come back with print outs from PDR Online, and they
>both said, Yep, these symptoms sound like side effects from the Lupron.
>My Primary Care doctor just kept pushing the antidepressants on me,
>which would have been fine if I were depressed, but I'm NOT. He AIN'T
>my doctor any more :-)
>I will pray for you and what you are going through, that you can find a
>good doctor who can help you. For what it's worth, I took my last
>injection Feb. 9th, and I am getting back to normal now. But, I still
>have muscle/joint pain, and gastrointestinal issues, so I'm still
>working on getting back to where I was, when I only had endo to deal
>with. I think I've come to realize that I might never get back to
>"normal", but if I can get a little better every day then that is
>something.
>Feel free to email me if you want to talk about it more.
>-Dawn
>
>At Mon, 23 Aug 2004, Kim wrote:
>>
>>At Wed, 11 Dec 2002, Amy wrote:
>>>
>>>Tiffany,
>>>Everyone reacts to Lupron differently. I put put off trying Lupron for
>>>years because I was worried about all the negative things I had read
>>>about it. I finally tried it last year due to not having too many other
>>>options. My experience was great! I did have night sweats and hot
>>>flashes, but found those to be more annoying than anything. I would be
>>>sick at my stomach and get a bad migraine the first day or two after
>>>getting the actual shot, but then those symptoms would go away. And I
>>>found my butt to be really sore for a few days at the injection site
>>>(kinda like it feels when you get a tetnus (sp?) shot). I did 9 months
>>>of shots (the last three I took add back therapy which totally
>>>eliminated the hot flashes and night sweats) and was pain free the
>>>entire time! I even stayed pain free for about a year after stopping
>>>them. I have to say that I would definitely do it again! You really
>>>just have to weigh out the good and the bad and make a decision for
>>>YOURSELF. Do not let anyone else tell you what to do.
>>>
>>>Good luck! Feel free to email me privately if you want to talk more
>>>about it.
>>>
>>>Amy
>>>
>>>At Mon, 9 Dec 2002, Tiffany wrote:
>>>>
>>>>I recently had a Lap done and I will now be starting Lupron Treatment
>>>>and I am very concerned about the side effects. For one, I do not want
>>>>to gain weight or get facial hair or a deep voice. If you have been or
>>>>are on Lupron can you please advise what side effects you experienced
>>>>and if Lupron helped your Endo and the pain.
>>>>
>>>>--
>>>>Take Care,
>>>>Tiffany
>>>>
>>--
>>I have had 2 shots of Lupron to shrink uterine fibroids. Since then I have had sleeping problems, major anxiety, panic attacks, chest pain, tingling and numbness in my fingers, muscle and joint pain, short-term momory loss, mouth sores, ear-cartilage pain, mood swings, nervousness....I am a mess!! This all started shortly after I had the injections. I stopped after 2 shots and these symptoms have progressivily gotten worse!! My doctors don't seem to either know enough about Lupron or seem to think it is related. Help!
>>
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