ENDO Messages for November, 2004: Re: Endometriosis and Paralysis

Re: Endometriosis and Paralysis

From: Sonia (anonymous@obgyn.net)
Sun Nov 28 13:08:53 2004

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In reply to: lynnifer: "Endometriosis and Paralysis"

At Mon, 22 Nov 2004, lynnifer wrote: >
>I have been a T-12 Paraplegic for twenty years. That is, unable to feel
>or move anything from the waist down.
>
>In May, I noticed unusual periods that were not consistent. In
>September, I was off work for four days with pain through my back that
>kept me in bed. At the same time, I drastically lost what little
>bladder function I had. I went to see my doctor who ordered an
>ultrasound (couldn't see the left ovary) and I never heard anything
>back. He put me on birth control and said he'd refer me to a
>gynecologist (I've never been - I know, scarey at 32yrs of age - but no
>one's office will accommodate a wheelchair!) I haven't heard from him
>since.
>
>The pain still comes with every cycle. I was taking Bextra for the pain
>- but it is headed down the same road as Vioxx (causes heart problems)
>so I'm back to taking Motrin which barely helps but better than nothing.
>Now I have been having a light period for almost three weeks and a
>heavy, heavy one at the time I should.
>
>My bladder is no better. When you become paralyzed at T-12 or below
>(belly-button), you lose control of your bladder - among other things!
>Since my nerves will not allow my bladder to contract to empty, for
>twenty years I've been pushing on my bladder to empty from the outside
>of my body.
>
>Now I'm worried that I've done some damage because I'm constantly
>leaking.
>
>I'm a mess!
>
>First of all, I'm wondering if there are any gynecologists in the
>London, Ontario area who are familiar with spinal cord injury. Secondly,
>does this sound like the Endometriosis that my doctor suspects?
>
>Signed - As if paralysis wasn't enough!

Hello Lynnifer;

> Hi, I kind of know what you had been living, in my case happens almost 10 years ago more like 11 on February, today, everytime on the time of my periods or even in sex I feel pain in my waist down to my right leg.

Well this is my story; I was on school, it was the valentine’s day and suddenly I could not move my body from my waist down and was on pain, well from the school call the paramedics and they went to the second floor were I was to pick me up because I was paralyze, the tock me to ER and check by touching, x-ray and a sonogram, put me something for the pain and to call me down, they could not find nothing bad and send me home, so that night I recover the movement almost without pain, a couple days later my mom tock me to the ob-gyn and he told us that I have my right ovary attach on the back utero and it can be put were it belongs but I have to be on bed rest for almost 3 month but it may not workout. I decided not to do it, now my ovary still on the same spot.

Now the pain comes and go and the last 2 things I was told "The ovary is out of place, but it doesn’t bother with anything, the pain is because with the changes in each month it might be pressing down the nerve" and the other " You might have endometriosis, but because of your are overweight is not safe to perform a paporoscopy and the medication may get you more overweight, so try to loose weight and then try to get pregnant and if in a year you don’t get pregnant we try something else, besides that, painkillers".

What I did, I try almost everything to loose wait but the most pounds I loose were 30 besides that is like a "yo-yo" my weight, I’m still trying, find a boyfriend, did not workout, he left me 10 months before the wedding, now I did not trust men, I had others boyfriends, but more like friends, for the pain anything I can find to kill the pain, muscle relaxes, use a heating pad almost all the time, bed rest, when I am not working, a part time-job by the way, used 3 kinds on birth control pills, went to 4 ob-gyn, 3 other doctors general medicine, went to the psychiatry to treat my depression, but here I am, with my ex-fiancée I started to search options of treatments, with him and by my own, then I found this website and with all your posts pick from here and there trying to live the best I can.

I don’t know if this is going to help you with something (maybe I have to let it out, tell to someone else) but what I am trying to tell you is to go to the ob-gyn and other doctors tell them what you fell, if that one doesn’t help you go to another until you find the one who give you some comfort and help you to fell better, search, read, maybe some day, somewhere are going to be the key of the complementing one thing with others so you find what is going to work for you.

Vanessa

Next message: Abbey: "To D.N. Re: frequent periods and sore breasts"
Previous message: holly: "Re: blood in stool and anal bleeding--VERY scared"
In reply to: lynnifer: "Endometriosis and Paralysis"

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