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Re: Endometriosis and Paralysis
From: lynnifer (anonymous@obgyn.net)
Sun Nov 28 06:04:14 2004
Thanks Tracy - after 20yrs of paralysis, I'm quite familiar with UTI's
and their symptoms. This is different. Hope I can find help soon.
At Tue, 23 Nov 2004, Tracy wrote:
>
>Hi lynnifer,
>I must say that your story is unique to me but I might be able to help.
>First, it sounds like it might be a urinary tract infection. Have the
>doc take a look at your urine. Second, your pains could be from endo
>but the only way to know for sure it to have a laparoscopy. One of the
>keys to a person having endo is pain. I think it's really ignorant that
>docs in your area don't have a wheelchair access. I'm in the US and all
>docs and hospitals in the US are required to have this. I suppose a
>person doesn't think about it too much unless they hear a story like
>yours. You might be able to find a doctor online. It's time consuming
>but easier than calling all of them in the phone book. Good luck on
>your search. Your family doc should be able to rule out a urinary tract
>infection without the need of a gyno. You can also see a uriologist for
>bladder problems. I hope you can find a doctor to give you the help you
>need. You could also call your local hospital and ask if they know a
>doctor who can help.
>Tracy
>
>At Mon, 22 Nov 2004, lynnifer wrote:
>>
>>I have been a T-12 Paraplegic for twenty years. That is, unable to feel
>>or move anything from the waist down.
>>
>>In May, I noticed unusual periods that were not consistent. In
>>September, I was off work for four days with pain through my back that
>>kept me in bed. At the same time, I drastically lost what little
>>bladder function I had. I went to see my doctor who ordered an
>>ultrasound (couldn't see the left ovary) and I never heard anything
>>back. He put me on birth control and said he'd refer me to a
>>gynecologist (I've never been - I know, scarey at 32yrs of age - but no
>>one's office will accommodate a wheelchair!) I haven't heard from him
>>since.
>>
>>The pain still comes with every cycle. I was taking Bextra for the pain
>>- but it is headed down the same road as Vioxx (causes heart problems)
>>so I'm back to taking Motrin which barely helps but better than nothing.
>>Now I have been having a light period for almost three weeks and a
>>heavy, heavy one at the time I should.
>>
>>My bladder is no better. When you become paralyzed at T-12 or below
>>(belly-button), you lose control of your bladder - among other things!
>>Since my nerves will not allow my bladder to contract to empty, for
>>twenty years I've been pushing on my bladder to empty from the outside
>>of my body.
>>
>>Now I'm worried that I've done some damage because I'm constantly
>>leaking.
>>
>>I'm a mess!
>>
>>First of all, I'm wondering if there are any gynecologists in the
>>London, Ontario area who are familiar with spinal cord injury. Secondly,
>>does this sound like the Endometriosis that my doctor suspects?
>>
>>Signed - As if paralysis wasn't enough!
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