Re: Why so much pain?
From: Anna (anonymous@obgyn.net)
Sun Nov 28 00:05:06 2004
Lorrie et al,
I'm sorry you are experiencing so much pain. I have pain throughout the
month, but generally I can bear it with the exception of when I'm on my
period. My GYN tried to tell me I shouldn't have symptoms when I'm not
on my period -- what is up with that? I definitely have symptoms
throughout the month, like you do.
My burning question:
Why would you go on antibiotics for endometriosis? I am very curious.
-Anna
At Thu, 25 Nov 2004, Angie wrote:
>
>I feel for you!! Emergency rooms suck, especially since endo doesn't
>show up on any test so you don't really have any firm "proof" that you
>have it. Have you considered a pain mgmt clinic? They use a lot of
>different types of treatments... medications (narcotic, anti
>inflammatory, neuropathic, etc), physical therapy (which I don't know
>how that could help endo but it couldn't hurt), etc. Anyway, the point
>is that their main and only focus is treating pain. Ask your primary
>care or OBGYN for a referral, I think you'll be very happy with the
>results. I have been going to one for the last 4 months or so and am
>very glad I found them. We haven't found a medication that works well
>yet but I just switched to a new one yesterday so I have hope!! No one
>should have to live in constant pain. If you have any questions, please
>don't hesitate to email me at jakesmom_us@yahoo.com.
>
>Take care,
>Angie
>
>At Thu, 25 Nov 2004, Angel wrote:
>>
>>At Mon, 28 Jul 2003, Lorrie wrote:
>>>
>>>Hi, I've been to the hospital several times in the last couple of weeks
>>>because of my endometriosis. I've had surgery for it, actually a month
>>>and a half ago and unfortuantly it came right back. The pain is so
>>>horrible! I try to wait it out as long as possible, but the pain gets so
>>>bad I end up having to go,ALOT! The hospital is actually starting to get
>>>kind of mean with me when I go there cause they can never find anything,
>>>cause as you know endometriosis can't really be detected on CT scans
>>>unless there's scaring. So I think they think I'm not telling the
>>>truth, which I truely don't understand and at one point had to complain
>>>to the CEO of the hospital for it. Well anyway to get to my point I
>>>would just like to know if anyone's been on this shot for a while and if
>>>they can give me any information about it,like does it truely work? It's
>>>my last resort. I would love to have children someday and want it more
>>>than anything, but fear it wont happen because of the disease and I'll
>>>soon need a historectomy. HELP!
>>>
>>>--
>>>Lorrie/20/Venice,Fl
>>>
>>--
>>Lorrie I understand exactly what you mean, you see I have had this for just
>>3 years now I have had every tablet, painkiller antibiotic you can imagine
>>and nothing works (see below) and they are starting to get fed up with me too
>>there must be something more to it musn't there. DO NOT RUSH to have hystrectomy
>>there are other alternatives try reflexology, reiki or anything else before
>>resorting to that. I also believe that laser surgery may help you. There are a lot
>>of women who have had a hysterectomy and still have the pain. WAIT PLEASE DO!!
>>
>>Hi I want to know if anyone suffers pain 24/7 period or no period and if it's
>>normal my pain is mainly in my left side and it has been like this for 3 years
>>the only thing that cures it is being on a antibiotic drip for 5 days!! Please
>>If anyone else has these symptoms let me know!! I am DESPERATE!! thanks
>>
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