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Re: Why so much pain?
From: Angie (anonymous@obgyn.net)
Thu Nov 25 11:02:38 2004
I feel for you!! Emergency rooms suck, especially since endo doesn't
show up on any test so you don't really have any firm "proof" that you
have it. Have you considered a pain mgmt clinic? They use a lot of
different types of treatments... medications (narcotic, anti
inflammatory, neuropathic, etc), physical therapy (which I don't know
how that could help endo but it couldn't hurt), etc. Anyway, the point
is that their main and only focus is treating pain. Ask your primary
care or OBGYN for a referral, I think you'll be very happy with the
results. I have been going to one for the last 4 months or so and am
very glad I found them. We haven't found a medication that works well
yet but I just switched to a new one yesterday so I have hope!! No one
should have to live in constant pain. If you have any questions, please
don't hesitate to email me at jakesmom_us@yahoo.com.
Take care,
Angie
At Thu, 25 Nov 2004, Angel wrote:
>
>At Mon, 28 Jul 2003, Lorrie wrote:
>>
>>Hi, I've been to the hospital several times in the last couple of weeks
>>because of my endometriosis. I've had surgery for it, actually a month
>>and a half ago and unfortuantly it came right back. The pain is so
>>horrible! I try to wait it out as long as possible, but the pain gets so
>>bad I end up having to go,ALOT! The hospital is actually starting to get
>>kind of mean with me when I go there cause they can never find anything,
>>cause as you know endometriosis can't really be detected on CT scans
>>unless there's scaring. So I think they think I'm not telling the
>>truth, which I truely don't understand and at one point had to complain
>>to the CEO of the hospital for it. Well anyway to get to my point I
>>would just like to know if anyone's been on this shot for a while and if
>>they can give me any information about it,like does it truely work? It's
>>my last resort. I would love to have children someday and want it more
>>than anything, but fear it wont happen because of the disease and I'll
>>soon need a historectomy. HELP!
>>
>>--
>>Lorrie/20/Venice,Fl
>>
>--
>Lorrie I understand exactly what you mean, you see I have had this for just
>3 years now I have had every tablet, painkiller antibiotic you can imagine
>and nothing works (see below) and they are starting to get fed up with me too
>there must be something more to it musn't there. DO NOT RUSH to have hystrectomy
>there are other alternatives try reflexology, reiki or anything else before
>resorting to that. I also believe that laser surgery may help you. There are a lot
>of women who have had a hysterectomy and still have the pain. WAIT PLEASE DO!!
>
>Hi I want to know if anyone suffers pain 24/7 period or no period and if it's
>normal my pain is mainly in my left side and it has been like this for 3 years
>the only thing that cures it is being on a antibiotic drip for 5 days!! Please
>If anyone else has these symptoms let me know!! I am DESPERATE!! thanks
>
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