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Re: Endometriosis and Paralysis
From: Tracy (anonymous@obgyn.net)
Tue Nov 23 16:58:30 2004
Hi lynnifer,
I must say that your story is unique to me but I might be able to help.
First, it sounds like it might be a urinary tract infection. Have the
doc take a look at your urine. Second, your pains could be from endo
but the only way to know for sure it to have a laparoscopy. One of the
keys to a person having endo is pain. I think it's really ignorant that
docs in your area don't have a wheelchair access. I'm in the US and all
docs and hospitals in the US are required to have this. I suppose a
person doesn't think about it too much unless they hear a story like
yours. You might be able to find a doctor online. It's time consuming
but easier than calling all of them in the phone book. Good luck on
your search. Your family doc should be able to rule out a urinary tract
infection without the need of a gyno. You can also see a uriologist for
bladder problems. I hope you can find a doctor to give you the help you
need. You could also call your local hospital and ask if they know a
doctor who can help.
Tracy
At Mon, 22 Nov 2004, lynnifer wrote:
>
>I have been a T-12 Paraplegic for twenty years. That is, unable to feel
>or move anything from the waist down.
>
>In May, I noticed unusual periods that were not consistent. In
>September, I was off work for four days with pain through my back that
>kept me in bed. At the same time, I drastically lost what little
>bladder function I had. I went to see my doctor who ordered an
>ultrasound (couldn't see the left ovary) and I never heard anything
>back. He put me on birth control and said he'd refer me to a
>gynecologist (I've never been - I know, scarey at 32yrs of age - but no
>one's office will accommodate a wheelchair!) I haven't heard from him
>since.
>
>The pain still comes with every cycle. I was taking Bextra for the pain
>- but it is headed down the same road as Vioxx (causes heart problems)
>so I'm back to taking Motrin which barely helps but better than nothing.
>Now I have been having a light period for almost three weeks and a
>heavy, heavy one at the time I should.
>
>My bladder is no better. When you become paralyzed at T-12 or below
>(belly-button), you lose control of your bladder - among other things!
>Since my nerves will not allow my bladder to contract to empty, for
>twenty years I've been pushing on my bladder to empty from the outside
>of my body.
>
>Now I'm worried that I've done some damage because I'm constantly
>leaking.
>
>I'm a mess!
>
>First of all, I'm wondering if there are any gynecologists in the
>London, Ontario area who are familiar with spinal cord injury. Secondly,
>does this sound like the Endometriosis that my doctor suspects?
>
>Signed - As if paralysis wasn't enough!
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